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Anonymous (reply to Anonymous)

Hi Debbie,

Thank you for your kind words. I hope that I can and do help others going through similar situations. It is hard, no doubt about it. There is nothing easy about not feeling good, and not being able to find someone to listen and help you.

I am more than happy to share my doctor's name with you at Barrow's. It is Dr. Robert Spetzler. Amazing man! He does not talk much or get on a very personal level with you as a patient, but he is very pleasant, very kind, and very helpful! I would recommend him all day long to anyone. He REALLY knows his line of work, and what I liked, was that he is not an extremely young doctor, popmous or anything. He is aged, but not too aged. Do you know what I mean? You know that he has been around a while and really knows his field. On top of that, what really helped me feel good about him is that he has equipment named after him. He has developed equipment....telling these companies what he needs a piece of equipment to do, and they develop it and name it after him. He is special; and he knows brain cysts well!

And you are correct, I did not have a choice, which is exactly what I explained to my father (who is also a physician, but general practice) that there are so many procedures out there that people can decide whether or not they want it done. I had no choice. I knew that if I did not have it done, I would at the very least start having seizures...at the worst, I would die. I am sure I would not be here today if I did not have the surgery. My brain was so compromised by this cyst. On film you cannot see the whole back part of my brain. My cyst takes up about 1/2 of my brain....maybe a smidgen less. But every doctor, including my surgeon in AZ, has told me it is either one of the largest cysts they've seen in their practice, or "the" largest.

Please let me know if there is anything I can help you with. And yes, my cyst has given me some tinnitus too. I am used to it now, but even still, when it gets very loud it gets annoying!

Take care...
Maria

March 15, 2010 - 8:04pm

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