Debbie, Since April 10th when the ac was discovered because of a dirtbike accident, we have been speaking with several neurosurgeons and neurologists at Barrows. The answers they give us often disagree with one another, and this week the neurosurgeon finally said they really don't know much of anything about these cysts for a certainty (and she specializes in these with papers published on them). So it seems we are in a world of theories - hence there are people pushing for more research. The neurosurgeon really feels my son was born with this cyst - but again she can not say with a certainty tho she is pretty convinced. Other than migrain like episodes starting about 5 years ago - in the beginning we could not point at other symptoms but in hindsight my son now relates things he thought as normal since he had them as long as he can remember. They don't know when it grew so big - are was it always this large? The past year he lost his full scholarship, said he couldn't read, study, remember, became more angry, etc. He also has told us for several years that he had something in his head. His first neurosurgeon told us the migrain episodes were nothing like migraines, that it was the cyst, etc. However, now after surgery the horrible episodes he now has neurologists are saying that he has always had migraines and the migraines had nothing to do with the cyst (even tho they contribute his current symptoms to the remaining large amount of fluid). So I write all this to say that we have had many conflicting answers. The greatest help in all of this has been the books I have read having to do with mild brain injury, after brain surgery, etc. which come from people's actual experiences.
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Debbie, Since April 10th when the ac was discovered because of a dirtbike accident, we have been speaking with several neurosurgeons and neurologists at Barrows. The answers they give us often disagree with one another, and this week the neurosurgeon finally said they really don't know much of anything about these cysts for a certainty (and she specializes in these with papers published on them). So it seems we are in a world of theories - hence there are people pushing for more research. The neurosurgeon really feels my son was born with this cyst - but again she can not say with a certainty tho she is pretty convinced. Other than migrain like episodes starting about 5 years ago - in the beginning we could not point at other symptoms but in hindsight my son now relates things he thought as normal since he had them as long as he can remember. They don't know when it grew so big - are was it always this large? The past year he lost his full scholarship, said he couldn't read, study, remember, became more angry, etc. He also has told us for several years that he had something in his head. His first neurosurgeon told us the migrain episodes were nothing like migraines, that it was the cyst, etc. However, now after surgery the horrible episodes he now has neurologists are saying that he has always had migraines and the migraines had nothing to do with the cyst (even tho they contribute his current symptoms to the remaining large amount of fluid). So I write all this to say that we have had many conflicting answers. The greatest help in all of this has been the books I have read having to do with mild brain injury, after brain surgery, etc. which come from people's actual experiences.
August 5, 2010 - 11:23amThis Comment
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