I live in Sydney Australia, my 20 year old daughter has just been diagnosed with an arachnoid cyst. she started having symptoms at the the age of approx. 11 years old. My family doctor didn't take it seriously and had her take an x-ray, of course it didn't show anything and my family doc put it down to that she had a problem with her glands. You would think him being a doctor that the next thing to do would be having a CT scan to see if the problem exists under her skull.
For the last 3 months she lost most of her vision in her left eye as well a visual lump that seems to have gotten bigger. I went to 3 doctors who didnt take it seriously and made her do a ultra sound, of cause nothing abnormal showed up. It took 2 more doctor appointment to finally one sent her to have a CT scan. And there it was almost 5cm x 3.5 cm, it was scary as i didn't know much about these cyst. In my daughters case the cyst has actually pushed on the skull making it protrude which makes her look like she has a bump just above her eye.
She got put on a waiting list to see a neurosurgeons approx. 6 weeks. At one time she had so much pain that she ended up in hospital at Westmed, they had so many people ahead that they just gave her a needle so she could stop vomiting and 2 prodene tablets and we went home. Since then I have taken her to Concord hospital, they were more humane about her condition. She has since seen a neurosurgeons. At her appointment, his concern was more for her eye sight problems, trying to avoid talking about her cyst.
Reading stories on the internet prior to her appointment left me feeling that this wouldn't happen in Australia, surly if you are have an appointment with a neurosurgeon it means that surgery is the only option left. He came out and told us that he was not thinking of offering surgery as an option, just by looking at the scans. He made her feel that the discomfort and pressure could not be caused by this cyst. I asked for pain relief since him being a specialist in his field and he could not offer any, that she should go and talk to her family doctor. He did offer her to have an MRI, but that is 6 weeks away. I have done one recently privately, and it gave the exact size being 40 x 35mm, slightly smaller. Does anyone know any doctors in Australia who have knowledge and have personally dealt with arachnoid cyst, i would really appreciate any information for my daughters wellbeing. God bless.
Comment Reply
I live in Sydney Australia, my 20 year old daughter has just been diagnosed with an arachnoid cyst. she started having symptoms at the the age of approx. 11 years old. My family doctor didn't take it seriously and had her take an x-ray, of course it didn't show anything and my family doc put it down to that she had a problem with her glands. You would think him being a doctor that the next thing to do would be having a CT scan to see if the problem exists under her skull.
For the last 3 months she lost most of her vision in her left eye as well a visual lump that seems to have gotten bigger. I went to 3 doctors who didnt take it seriously and made her do a ultra sound, of cause nothing abnormal showed up. It took 2 more doctor appointment to finally one sent her to have a CT scan. And there it was almost 5cm x 3.5 cm, it was scary as i didn't know much about these cyst. In my daughters case the cyst has actually pushed on the skull making it protrude which makes her look like she has a bump just above her eye.
She got put on a waiting list to see a neurosurgeons approx. 6 weeks. At one time she had so much pain that she ended up in hospital at Westmed, they had so many people ahead that they just gave her a needle so she could stop vomiting and 2 prodene tablets and we went home. Since then I have taken her to Concord hospital, they were more humane about her condition. She has since seen a neurosurgeons. At her appointment, his concern was more for her eye sight problems, trying to avoid talking about her cyst.
Reading stories on the internet prior to her appointment left me feeling that this wouldn't happen in Australia, surly if you are have an appointment with a neurosurgeon it means that surgery is the only option left. He came out and told us that he was not thinking of offering surgery as an option, just by looking at the scans. He made her feel that the discomfort and pressure could not be caused by this cyst. I asked for pain relief since him being a specialist in his field and he could not offer any, that she should go and talk to her family doctor. He did offer her to have an MRI, but that is 6 weeks away. I have done one recently privately, and it gave the exact size being 40 x 35mm, slightly smaller. Does anyone know any doctors in Australia who have knowledge and have personally dealt with arachnoid cyst, i would really appreciate any information for my daughters wellbeing. God bless.
May 19, 2011 - 11:15pmThis Comment
Reply