Anon - It's perfectly understandable that you would be "freaked out" from learning that you have this condition. Your doctor may have been concerned that you could become overwhelmed, and also confused, by the wide variety of both credible and truly bad information available online. To work in partnership with your doctor to manage your health though it means becoming informed and gaining a better sense of control over your condition. I'm glad you came to our site - we're here to help you.
First - here's our reference page on scleroderma which will provide you with a basic overview of the condition and treatments: https://www.empowher.com/media/reference/scleroderma
Second - The Scleroderma Foundation provides a wide range of support services, and has experience in helping other newly diagnosed women learn how to deal with this condition. They offer assistance including support groups and message boards. You can find them at http://www.scleroderma.org/
I hope this information is helpful, and that you'll keep in touch. Take care, Pat
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Anon - It's perfectly understandable that you would be "freaked out" from learning that you have this condition. Your doctor may have been concerned that you could become overwhelmed, and also confused, by the wide variety of both credible and truly bad information available online. To work in partnership with your doctor to manage your health though it means becoming informed and gaining a better sense of control over your condition. I'm glad you came to our site - we're here to help you.
First - here's our reference page on scleroderma which will provide you with a basic overview of the condition and treatments: https://www.empowher.com/media/reference/scleroderma
Second - The Scleroderma Foundation provides a wide range of support services, and has experience in helping other newly diagnosed women learn how to deal with this condition. They offer assistance including support groups and message boards. You can find them at http://www.scleroderma.org/
I hope this information is helpful, and that you'll keep in touch. Take care, Pat
April 30, 2010 - 5:08pmThis Comment
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