Thanks for bringing up the topic of Lyme disease. I've only just found this forum and the wealth of information looks really great.
I've had Lyme disease for 25 years but it took 20 years to find out. I'm now taking antibiotics but it was hard to get a doctor to understand that the infection was still there after all those years. My face had a kind of bell's palsy for 8 months. I never got the Bulls Eye rash at the beginning, even though there were 12 ticks on my shins. But when I began treatment the rash came out as several small red ring-shapes on my legs. I am slightly better - the vertigo has gone, but the longer the time before treatment, the longer it takes to get better. I might have got permanent damage to my heart and nerves but I am still optimistic that I will slowly get my life back.
It's so difficult in the UK to find a doctor who knows how to treat Lyme. Together with some other patients I've started a petition called the UK Lyme Petition. One of us would have had her little toddler lose his eyesight if she had not gone and found a private doctor. The NHS is supposed to cover all of our health costs but refuses to believe that treatment will help us, so we get more and more sick unless we can find a private doctor and afford to pay. Antibiotics have helped a lot of us recover almost completely. One of my friends lost her job - she was diagnosed with Polymyalgia Rheumatica for about 2 or 3 years. Now she is like a new person with no arthritis pain and able to ride a bike, do her garden, everything she thought she would never do again.
here's the petition link : http://www.ipetitions.com/petition/uklymepetition/
here's my friend's link : http://lookingatlyme.blogspot.com/
If you are in the UK or live and work in the UK, please support us
- even if you don't want to sign it until you find out more, please have a look at some of the comments from those who have already signed. Thank you. Best wishes and better health to all of us and our families and friends!
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Thanks for bringing up the topic of Lyme disease. I've only just found this forum and the wealth of information looks really great.
I've had Lyme disease for 25 years but it took 20 years to find out. I'm now taking antibiotics but it was hard to get a doctor to understand that the infection was still there after all those years. My face had a kind of bell's palsy for 8 months. I never got the Bulls Eye rash at the beginning, even though there were 12 ticks on my shins. But when I began treatment the rash came out as several small red ring-shapes on my legs. I am slightly better - the vertigo has gone, but the longer the time before treatment, the longer it takes to get better. I might have got permanent damage to my heart and nerves but I am still optimistic that I will slowly get my life back.
It's so difficult in the UK to find a doctor who knows how to treat Lyme. Together with some other patients I've started a petition called the UK Lyme Petition. One of us would have had her little toddler lose his eyesight if she had not gone and found a private doctor. The NHS is supposed to cover all of our health costs but refuses to believe that treatment will help us, so we get more and more sick unless we can find a private doctor and afford to pay. Antibiotics have helped a lot of us recover almost completely. One of my friends lost her job - she was diagnosed with Polymyalgia Rheumatica for about 2 or 3 years. Now she is like a new person with no arthritis pain and able to ride a bike, do her garden, everything she thought she would never do again.
here's the petition link : http://www.ipetitions.com/petition/uklymepetition/
here's my friend's link : http://lookingatlyme.blogspot.com/
If you are in the UK or live and work in the UK, please support us
April 20, 2010 - 1:32am- even if you don't want to sign it until you find out more, please have a look at some of the comments from those who have already signed. Thank you. Best wishes and better health to all of us and our families and friends!
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