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Hi, Thank you for your support. I hope made some sort statement & agree with the autoimmune poss. really Lyme.
We,RA/MS/ALS/FMers/cfids/ME/++++. We all start out exactly the same live like that as though we got worse case flu we never able to get rid of. Many our symptoms are close just go from root of tree take diff. branch, No diff. than cancer gets into weakest area can get into. Plus all have brain neurotransmitter problems which loves to hide & work on. Many do not know about equine Lyme from horses, where mine could have even started. I know when was in Hosp. after camping, in for 10 days which called very rare meningitis. Sure main trigger. Never was quite well again took 10 yrs. for word Lyme ever came up, dxed with MS/FM/Cfids/ME/++++, then word Lyme came into life,which I suspected, gut thing, Like the auto Immune+. Very too long story, went through 8yrs. being stalked, sure pushed Lyme over edge,tested once positive for everything,Elisa,Western Blot,EBV/antibodies. Only once they say once was enough never told till sent for drs. paperwork 1 day. Hmmmmm?
How do handle pain,laughter,humor,My view, dolphins come in & calm me when they stop by.
Not to mention all the band aid meds(I call them,not sure). Took me 7 yrs. agony to finally say yes to meds. Last yr. pic line, only 6 wks. which now need constantly with orals,pulsing them. Chetes very smart mutate on own,change form & hide from biotics or grow to love & they grow where good bacteria gets killed off.
Yes, I talk about openly to get word out, strangers except better than family. Kids have signs & feel scared to be around me too vulnerable. Scares them they do not admit saw active fun loving,hard working tuff gal, go to BLOB. Scares people off. Our world is good for short term but never long. Too hard on them. I get it,I pretend alot, not bad looking so some want to think making all up.
How can anyone or why make up all the symptoms we live with from heart to brain to bowels,bladder. List never ends, not reliable(hardest for me to say). From truly min. to min. do you know how or what will be next....?Besides for 24/7 stuff.
Thanks so nice to have support from strangers, really MEANS SOOOOOO MUCH...
KerryBlue

April 25, 2010 - 10:29am

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