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Hello Maryann,

That is very kind of you to look up NAAF for me. I've been a long-time member and it truly is very helpful to surround oneself with others that share the same condition. It's the one environment where we are the norm. But then we all have to go back to the real world, where Alopecia is fairly rare and generally unknown.

Regarding the impact on me, it turns out to be the least of my worries, as my mom's doctors have been handling my Mom's care in a less than responsible manner. I am the only family member locally present and able to be by her side, so I will continue doing so. At the end of the day, my hair loss emotions are quite insignificant compared to my mother's safety and well-being.

Being stared at is a part of my life, one that will not likely change. I sometimes reach stages where I'm impervious to it and then certain circumstances cause me to digress to a previous stage of acceptance. On balance, I am at peace with it.

Thank you for writing and sharing your empathy. I hope that you have found peace with your past condition and resulting appearance changes. I know well that it is not easy.

All the best,
Susan

February 9, 2011 - 6:57am

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