Yes! I also have EDS. It took me 11 years of active hunting for an answer to what was happening to me and to find a doctor to diagnose me because I looked so normal. Nobody knew how my body was falling apart inside. I was told that doctors were always taught if you have someone with EDS you'll know. Why? Because we come in with chronic debilitating headaches and say, "by the way, I'm flexible." We don't even know that our flexibility is that weird! We trust doctors. They need to be looking for these things.
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Yes! I also have EDS. It took me 11 years of active hunting for an answer to what was happening to me and to find a doctor to diagnose me because I looked so normal. Nobody knew how my body was falling apart inside. I was told that doctors were always taught if you have someone with EDS you'll know. Why? Because we come in with chronic debilitating headaches and say, "by the way, I'm flexible." We don't even know that our flexibility is that weird! We trust doctors. They need to be looking for these things.
May 13, 2011 - 7:40pmThis Comment
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