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Hi Cathie,

I'm so sorry that you're going through so many symptoms without any answers. Have you tried getting a second opinion from another doctor? You don't need to go through all of your tests all over again but you can ask for a copy of your medical records from your current doctor and seek another opinion from a second doctor. Testing for Lupus can be quite extensive but usually there are some distinct symptoms that include:

Fatigue
Fever
Weight loss or gain
Joint pain, stiffness and swelling
Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
Skin lesions that appear or worsen with sun exposure
Mouth sores
Hair loss (alopecia)
Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud's phenomenon)
Shortness of breath
Chest pain
Dry eyes
Easy bruising
Anxiety
Depression
Memory loss

You don't have to experience all of these symptoms in order to be diagnosed with lupus because no two lupus patients are identical. If you feel like this is what you have but have yet to be diagnosed. please feel free to seek a second opinion after 5 years of testing.

We wish you the best,

Rosa