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Anonymous

I was diagnosed with Lupus affecting my central nervous systems, kidneys, blood and lungs. Initially my disease was so severe that I was treated with chemotherapy infusions every three to five weeks for over 5 years. Now I'm doing well for the most part in terms of vital organ insolvent. I work full time and have a full life. For years I too have suffered with muscle cramps, initially in my feet which went away if I ate a potassium rich food but now there seems to be no relief. My doctor started me on high doses of pharmaceutical magnesium which can only be purchased with a prescription. Initially I was taking 500 mg daily now I'm taking over 2000 mg and the muscle cramps continue sporadically. Keeping me up all night in pain and frustration which is affecting my ability to function professionally throughout the day. Magnesium is the primary case of muscle cramps so it's worth discussing with your doctor.

I Agee with the others posts Lupus is a mysterious disease and it presents itself differently for everyone. It's easy to let it get you down, but you can't. Today that's harder to say than other days as had a bad night and I'm tired of feeling lousy in the morning, I want to live and enjoy life. Diet and exercise can help, hydration is extremely important and exercise. For those with pain I suggest floor plates, it's gentle and well build muscle strength. Hot baths and Epsom salts help to comfort painful muscles. I good support system is key. I've never posted on this board but felt compelled to do so today after I read others comments. I wish you all a great day and even better night sleep tonight!

February 17, 2018 - 10:08am

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