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Expert HERWriter Guide Blogger (reply to Anonymous)

Hi Deborae - Thanks for your comments and kind remarks. I researched multiple sources and was unable to find any references to staging. I am truly sorry to hear that your mom has lost so much weight and that the cancer has metastasized.With a rare cancer like hers it's going to be hard to find information in regular search engines. Google has another search engine named "Google Scholar" which you can use to reach clinical articles including case studies. If you want to really go in-depth into understanding your mom's cancer then this can help you. For some people this is the right thing to do, for others it's way too much information and too hard to read the cold, clinical descriptions. Use your own best judgement on what's right for you.

As for me, I'm alive and well with a rare blood cancer that previously was terminal for 90% of those who got it, but is now treated with a breakthrough targeted therapy, the fastest drug in history to be approved by the FDA. I'm grateful for the second chance at life that I was given and appreciate those who came before me and went through the development process and clinical trials that ended up enabling me to live. I devote a lot of my time to helping other people who also have my rare cancer so they can better understand how to live well with ongoing treatment and side effects, expenses, and so forth.

Take care and thanks for looking out for your mom, I'm sure that means a lot to her.

Pat

 

September 17, 2014 - 6:46pm

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