I was misdiagnosed with PCOS, and later found out I have a fairly rare adrenal issue which has a different treatment path. I still remain an active member of my PCOS support group, though. The symptoms are close enough that we can relate.
Apparently 10% of PCOS diagnoses are actually attributable to the genetic condition non-classical Congenital Adrenal Hyperplasia. I advocate that all women with PCOS should see an endocrinologist experienced with the syndrome. Between Diabetes risk, Insulin Resistance and the possibility it might be thyroid (I also have a small goiter) or adrenal in nature, it is necessary. I was sent to more than one GYN and to a dermatologist until convince my PCP I should see an Endo. Best advocacy I ever did.
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I was misdiagnosed with PCOS, and later found out I have a fairly rare adrenal issue which has a different treatment path. I still remain an active member of my PCOS support group, though. The symptoms are close enough that we can relate.
March 16, 2008 - 9:22pmApparently 10% of PCOS diagnoses are actually attributable to the genetic condition non-classical Congenital Adrenal Hyperplasia. I advocate that all women with PCOS should see an endocrinologist experienced with the syndrome. Between Diabetes risk, Insulin Resistance and the possibility it might be thyroid (I also have a small goiter) or adrenal in nature, it is necessary. I was sent to more than one GYN and to a dermatologist until convince my PCP I should see an Endo. Best advocacy I ever did.
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