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From Patient to Advocate: Nancy Cappello Discusses Her Journey

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the journey for Nancay Cappello from patient to advocacy Photo Courtesy of Are You Dense Inc.

I started receiving invitations to speak and developed a brochure and fittingly named it Are You Dense? We officially started the corporation Are You Dense, Inc. in 2008, concurrently filed an application to the IRS as a 501(c)(3) public charity and launched the Are You Dense? website to educate the public about the risks and screening challenges of dense breast tissue.

Today, the website is bustling with interest from citizens across the United States and 65 countries. Just recently, Dr. Tozaki, a Japanese Radiologist and Founder of the Japanese Breast Cancer Imaging Network (BCIN), linked the website to the BCIN website to educate Japanese citizens about dense breast tissue -- a critical and potential fatal flaw in breast cancer screening.


You talked to EmpowHER Live in 2010. What has been happening with your advocacy work since then?

Nancy Cappello:

In 2009, through my continued work with the legislature, another landmark bill became law as Connecticut became the first state in the nation to standardize the communication of dense breast tissue to women through the mammography report. When I spoke to EmpowHER founder, Michelle King Robson in 2010, Connecticut was the only state that enacted legislation to protect women from later stage cancers by educating them about dense breast tissue.

Through our popular website and the vast outreach of Are You Dense Inc., I began hearing from women with the SAME common story – later stage cancer detected within months or weeks of a screening mammogram which reports “normal.”

I started Are You Dense Advocacy, Inc. in 2011; a 501(c)(4) public charity whose mission is to employ legislative and regulatory efforts to standardize the communication of breast density to women.

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We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.

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