Someone you love gets diagnosed with cancer and suddenly, unexpectedly, you become a cancer caregiver. Without any preparation or planning, you are now responsible for shepherding someone through what is likely the most terrifying experience of their life. It is a challenging duty and an extraordinary honor. And, although each situation is unique, here are some clues that are helpful to most people in this situation.
Clue #1: In order to help, you must be well and stay well. If you become ill, you cannot help the person you’re caring for and could make the patient sicker. Caregiving can be physically and emotionally draining; demanding long, stressful hours that make you more vulnerable to illness. Get a health checkup for yourself early on. Stay committed to your sleep, exercise and nutrition while being mindful of fatigue or other changes you experience. Any medical conditions you have, such as diabetes or cardiac issues, must be monitored carefully.
Clue #2: It’s complicated, so organizing records from the start is imperative. Create contact lists of all doctors, labs, clinics, and all other practitioners involved in treatment. List all drugs with dosages, treatment schedules and even chemo protocols. List family members’ information, should contacting them be necessary.
Clue #3: You don’t have to do it alone. Get creative and get help. Suggest ways friends and relatives can help with routine tasks, like grocery shopping. (Note: the better organized you are, the easier it is for others to help.) Determine the patient’s insurance coverage of supplemental medical support, such as home nursing and mental health services. Get a caregiver guidebook from experts in cancer caregiving.
Clue #4: Be flexible. You’ll act in many different capacities as a caregiver, from emotional sounding-board to doctor-visit buddy. Also, your role will shift as conditions change; affecting the scope and even length of time you’re needed. By anticipating change, you will be better able to respond to it; not just react to it.
Clue #5: Your caregiving role is your journey.