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Has anyone out there been suffering with "Fibromyalgia" longer than a couple of years? I have been for 5. Help.

By May 13, 2008 - 4:32pm
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I was diagnosed with Fibromyalgia about five years ago and have had very little relief since. I have seen numerous Drs and all say that this is Fibro. I hurt all the time and very little seems to help. Does anyone out there know what to do?

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EmpowHER Guest

Someone asked some years ago if Marcus Bloom's ebook on curing fibromyalgia works or is he a fake. Well? I'm surprised no one has given it a shot. Well? Does anyone have something to say? Surely one sucker must have tried it and would like to warn us to beware and not part with our money. Or sing praises if it has worked.

January 8, 2014 - 11:46pm
EmpowHER Guest

I take low dose Naltrexone and the pharmacist told me that it is rumored that it actually helps heal nerve endings that are thought to be damaged if you have fibromyalgia. do a search under "low dose naltrexone" and you will bring up lots of info on it. Hope this helps someone. Good luck, Jody!

March 24, 2013 - 2:07am

I was diagnosed with fibromyalgia approx. 12 years ago and now know I've had it for upwards of 20 years (until diagnosis, doctors virtually told me it was 'postural' - I've worked as an Executive Assistant all my working life - OR, worse still, 'all in my head'!!) I am a New Zealander, now living in Australia and both countries have treated me the same - I was diagnosed in Australia. I have been looking for relief for all of these 20 years and still haven't found it - would love to hear what medications/treatments other people are taking and are they effective? I have worked all my life, having to 'work through' my pain on many occasions. I finally retired at age 55 but my symptoms have not lessened (more is the pity!!)

February 21, 2012 - 6:43pm
EmpowHER Guest

I've had fibromyalgia for about 30 years, but I didn't know what it was called until I got an actual diagnosis about twelve years ago. My ebbs and flows from barely noticeable to totally debilitating every couple of years and up and down every few weeks within those years. Right now, I'm in a good place with it - I can run errands and such despite feeling a bit unwell - after two years of being pretty incapacitated by it (not being able to drive, home-bound, and such). After a year of appointments, I've had a great deal of help from the Fibromyalgia Treatment and Learning Center in Sacramento, CA, run by a rheumatologist and fibromyalgia researcher who seeks to treat the disease as naturally as possible (after extensive and detailed labs). Others I know have also been helped at this clinic. So, I just wanted to toss out this bit of info, hoping it might be helpful to someone. Blessings to each of you!

January 10, 2012 - 4:27pm

I was diagnosed in 2005 and my condition has gotten worse, but I'm also finding out new information all the time. I go to a chiropractor which helps with my mobility and pain. I recently was hit by a car at the local gas station. Not only am I in pain but my fibrofog is worse. I often feel like I go 10 steps forward then 20 steps back. I don't want to go into how this has affected me and my family. Let's just say it's not the best time in my life. I refuse to give up though.

September 8, 2010 - 9:58pm
EmpowHER Guest

my mum suffers from fibro AND m.e but none of the medication (lower dosage anti-depressants and strong painkillers) work! does anyine have any recomendations of meds that may be worth a try?

August 20, 2010 - 5:21am
(reply to Anonymous)

Hi Anon

Does she see a rheumatologist or pain therapy specialist? These are the best specialties to treat fibro. There are newer drugs they use for fibro now. Drugs like Lyrica and Neurontin, which were originally used to prevent seizures. They also work pretty well on nerve pain. So this class of drugs may be something your mum could try.

Good luck to you both. It can be so hard to find something that works well for fibro.

August 20, 2010 - 6:49am
EmpowHER Guest
Anonymous (reply to Cary Cook BSN RN)

I have been on Lyrica for going on 4 weeks and I now have hope that I will get through this. I have been in pain 1 year and my GP never recommended a rheumatologist untill I brought it up even though rheumatoid arthritis and fibro runs in my family. I have found a great doctor now and am so much less depressed and anxious since I have some pain relief. I hope it continues to help me.

February 9, 2012 - 9:43pm

has anyone tried the e-book "fibromyalgia a cure for life" by marcus bloom? would be really interested to see if it works or wether it is yet another scam to get money from us?

April 20, 2010 - 1:55pm

Well, it's been 2 years since my last posting here, on this topic. I finally rec'd my Social Security Disability in Oct. 2009, after a 3 year battle. I got 2 past years of payment, which gave me the opportunity to pay back all that had helped me in the past 3 years, pay off doctors and buy a car...with cash...all paid in full. It had been repo'd just over a year ago and I had to hide it because I live in the country and there is no transportation and I have dogs that might need a vet in a hurry. The repo was because I lost my jobs because of this illness...not because I was a scumbag. Anyway, as far as my pain and fatigue...it's the same or worse. It is never better. I am on Cymbalta and Hydrocodone, Flexeril and Xanex and am "OK" if I am just laying around...but I don't have any extra to take if I want, or have to, do physical housework. Nothing gets done. My present doc, just a GP, runs from the room like his pants are on fire when I ask for extra pain relief in order to get through my cleaning days. He's so afraid of narcotics. He believes that Cymbalta, or Savella or Lyrica are the ANSWERS to Fibro pain and difficulties. I can just imagine what the pharmaceutical reps tell him, because they sure aren't helping me. I can't take Savella because it has serotonin in it and has contraindications with some of my other meds.
Long story, short. I feel just as bad as ever and I don't have the stress of a job. I DO have a lot of stress because of the poverty medicare payments I receive for both my husband and me. He is in remission, finally, from pancreatic cancer, but he is still not employed and that is very hard on me. $1100 a month is all I get to take care of us. So, as you can see, nothing as improved for me in the pain and fatigue. I have been prescribed many different meds and have visited many docs over the years. Hopefully, my husband will get a job he's waiting for in Washington DC and then I can see someone at Johns Hopkins hospital. Maybe that'll be the help I need. I have tried to find another doctor but I've been turned down by about a dozen. No one wants to deal with fibro. I believe my current doc is the same way, but he doesn't say that... just writes a script that he feels comfortable with and won't listen to my pleas for help.

March 28, 2010 - 11:18pm
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