My girlfriend has been managing her Prolactinoma very well through medication, diet change and supplements and I'm VERY proud of her! Sometimes she gets headaches that feel like they're behind her eye and she says she "knows" they're being caused by her tumor. This obviously is frightening and often disheartening. But her tumor is shrinking and her prolactin levels are dropping, so this could also be just sinus pressure or any number of things.
I'm wondering if anyone could explain their experience with Prolactinoma induced headaches so she'll really know if these are related to her tumor or not.
How do they normally feel?
Are they only caused by large or growing tumors?
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