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I mentioned yesterday that I would be seeing my radiation oncologist and would ask him about the breat pain. He said it was very normal to have pain up to a year post treatment but was surprised to hear I still have tendermess. His only explanation was that there might still be an ongoing inflammatory process.
Nancy Spetzler
April 3, 2009 - 9:03amPhoenix, AZ
This Comment
I have been searching for someone with a similar problem as mine. I had 2 lumpectomies exactly a year ago. I finished radiation in late August. My affected breast is incredibly tender when I am hugged or when I just barely touch the area. It is not located close to my incision but rather on the opposite side of my breast. My mammogram in December was clear and I had an ultrasound done yesterday and that was clear as well. My surgeon is going to schedule me for an MRI and if that comes back negative, then we are going to treat the symptoms (pain.) I, too saw some articles on PBTPS. The peculiar and concerning thing for me (and thus the ultrasound and possible MRI) is that the pain has not always been there since finishing radiation. It didn't start until about 3-4 months afterward. I don't seem to have limited movement (although I do feel some stretching at times.) Is this something we just have to live with?
April 10, 2009 - 10:45amThanks,
Shelley
Cincinnti, OH
This Comment
I had a lumpectomy in March of 2006 and I also still have breat pain. You did not say if your pain is constant or upon contact. Mine is only on contact when, for example, someone gives me a nice big hug and my breat is rather "crushed", but it is severe and does not occur on my unaffected side. I have an appointment with my radiation oncologist this morning and will ask him about post lumpectomy pain and see if he has an opinion. Did you have radiation?
April 2, 2009 - 9:04amThis Comment
Hi,
I'm sorry you had to undergo two lumpectomies and radiation, and are still feeling pain more than two years later.
I have not been able to find much information on your question, except there is one article that mentions something called "Post Breast Therapy Pain Syndrome (PBTPS)" that you can read about here.
Have you spoken with your doctor about your symptoms? There is not much information I can provide to you, as there are so many variables that only you and your doctor can discuss, from the size of the lumps removed, to the location, etc.
I would love to hear back from you--what has your doctor said about your continued pain? Have you heard of PBTPS before, and does it sounds like what you are experiencing?
March 22, 2009 - 7:00amThis Comment