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Does anyone have CHF, COPD, Asthma, RSD and IBM with Fibromyalgia?
By
casaatthebeach
April 29, 2012 - 6:27pm
I have all of the above disorders. I wonder if maybe they are all related to each other. Does anyone else have all these problems?
By
siskiyou
October 28, 2012 - 9:22pm
i am curious in that i have SLE it seems all my life along with RA. Yes the fibro hurts but i like to know how it affects your life in other ways besides the pain it creates.
I do not sleep well due to my pain..but it is not just the fibro pain and i have restless legs that i know goes with it. But that is about it that is new since diagnosed with fibro. Rest i have had for years..but would be interested in how fibro feels to others.
thank you
This Comment
By
Sherry Penoyer Reynolds
October 26, 2012 - 1:33pm
I have a small team comprised of my Naturapath and Rheumatologist who work together on just about everything as it all is interconnected. There is also a counselor, and a Hellerworker as necessary. I have a close family and a wonderful group of friends who've been with me in both good times and bad. I'm also lucky enough to count one of my friends as my doctor. That took a lot of working out but well worth it.
October 26, 2012 - 1:33pmThis Comment
By
Sherry Penoyer Reynolds
October 24, 2012 - 12:40am
Oh, yes, definitely. I've been dealing with this for years now. Having had to retire from a life lived in the public's eye I've always gone by the 'if you look good you feel good' code. It used to work to bring up my spirits and soon I would feel better. But after my diagnoses I realized there was a reason that wasn't working anymore. Unfortunately, everyone around you only sees you from the outside and there are very few who will actually take the time to understand what fibro does to a life and how it messes with so many parts of a life.
Hang in there and make sure you understand the illness and have good resources to share with those of your family and friends who want to understand. It's helped in my family and may with yours. Don't give up.
October 24, 2012 - 12:40amThis Comment
By
minxdebra
October 17, 2012 - 10:29am
I have been recently diagnosed with Fibromyalgia but after seeing the differences between this and CFS I think I have both. Who knows I am going to talk to my Doctor next time I see him. I also have Asthma, COPD, Hep C, and a few other tidbits. Not sure what's related to what, which is kind of like the chicken and egg story so who know's. Maybe one day they will have studies that show links to the different illnesses. I am glad I finally have a name to all my silent suffering and weakness, tiredness etc. Now I have to work on getting my family to understand and then accept. No easy task. In the meantime there is still the overwhelming feeling of being alone and misunderstood. This is the silent disease. On the outside we look good even great but on the inside we are falling apart and my family doesn't have a clue. Does anyone else experience this?
October 17, 2012 - 10:29amThis Comment
By
mrsbabymj
May 14, 2012 - 7:47am
Well I have asthma however it's not connected to fibromyalgia. Now these are connected to fibromylagia, sleep apnea, IBS, Chronic Fatigue, Migraines and a few others and I have all of them.
May 14, 2012 - 7:47am
i am surprised that some outside of Mt Shasta knows about Hellerwork since the founder lives here. If you ever visited the office here, the fellow that shared office doing other type of body work recently passed. He was nice guy but his body work was too painful for me to handle. he said i must deal with it but when it hurts so much i am crying...and i cannot function due to pain after i just think he was wrong and did not understand my RA nor fibro.
October 28, 2012 - 9:29pmAs to hellerwork...i think you should explain what it is if you do not mind because most places do not have clue what it is about.
i just thought you might have known the fellow...and think it would be nice for you to explain it since it mainly exists here in northern calif or north west of US.
This Comment