Kelly recalls her reaction when she was told she has multiple sclerosis (MS).
When I was diagnosed with multiple sclerosis it had taken 18 months to finally get a name attached to what was happening to me. My husband and I were newly married and so, for the first year of our marriage we didn’t know what was going on. All I knew was I was numb and tingling. So, when I got the diagnosis my husband and I were out. We went to the doctor. We got a positive, a name to whatever we were dealing with.
Our first reaction was to go to my parent’s house and tell them what was happening, and it was weird because I was almost happy to know after dealing the unknown for so long. I thought, “Oh, now I know what the invader’s name is and I now had a handle fighting against it,” and so again, it was kind of an exciting moment to think, “I have a name.”
I went home to my parent’s house to say, “Got this diagnosis, woohoo!” No one was home. I don’t recall, I don’t think anyone was home. So my husband and I went out to get a hamburger and have a beer and we were like, “Woohoo, now we know,” thinking this is the beginning of the journey that we are going to take to figure this out and find out what we need to do to combat it.
So, that’s how it all happened again, 15 years ago, thinking at the time I thought, “If I know what it is, then I will know exactly what I need to do to remedy, to fix it, to fix the problem.” Unfortunately, there was no fix. There was no special research that I could do and find out exactly how to cure it and how to combat it.