My name is stephanie and I am 20 yrs old.
I suffer from hidradenitis suppurativa. it is an uncurable and paifull skin disease that is usually hereditary and usually occures in mostly women. my mother and my sister suffer from this skin disease as well. I have been suffering from this disease since i was 13 yrs old. I am very self conscious due to the scars so I am affraid to wear a swim suit. When i do have an outbreak it is so painfull and at times i get 5 lesions all at once. Sometimes i cant even sit or walk because it is so painfull. Most doctors are not familiar with this disease because it is not very common. If i had one wish in the world it would be to find a cure for this disease. I want to find others who have this skin disease so that i could learn from them or help them deal with this disease.
I also suffer from cronic back pain due to Scoliosis of the spine.
I have had hearing problems growing up. I had surgery twice to have tubes implanted in both my ears and planning to have another surgery.
I have RLS (Restless Leg Syndrome) in my legs because of poor cerculation, wich has caused me to have Varicose Veins on my legs.
I deal with having ADHD (Attention Deficit Hyperactivity Disorder). It is very embarassing to have this disorder because i feel dumb at times. I get laughed at alot because of some of the things i say just dont make sense to other people even though it makes sense to me. I took a perscription pill called Concerta. It is supposed to help you concentrate and it helped alot but when i was taking this perscription it made me very agressive and i didnt like that, so i stopped taking them.
I also suffer from anxiety. My type of anxiety causes me to have a panic attack at any moment. I dont have to be thinking about anything and i will have a panic attack. It is very scary when i have a panic attack because i cant breathe very well, my heart beats really fast and i sometimes blackout.