ask: Can you die directly or indirectly from endometriosis?
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Anonymous
May 2, 2010 - 5:02pm
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Years of pain and multiple surgeries.
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Anyone with any information please comment.... I can't get facts. Everyone seems to only offer opinions, I need the honest to God truth. Thank you to anyone who takes an interest!!!! Any stories would be greatly appreciated. I have no support and no one to talk to abou this besides my doc...
May 2, 2010 - 5:27pmThis Comment
Anon,
I dealt with endometriosis for years too, including two surgeries. I have real empathy for what you are going through.
Can you tell us more about your situation? Have you asked your doctor about your fears? They should tell you exactly what's going on with you.
Women don't die from endometriosis. It is hormonally fed, and most of the time when women get to perimenopause or menopause and have lower levels of hormones in their system, the endometriosis clears up. Though it can create horrible pain, inconvenience and infertility along the way.
What makes you so afraid here? Can you tell us more about your experiences?
May 4, 2010 - 9:18amDear Anon
Thanks for your question and welcome! Please know you have lots of support here on Empowher!
No, you cannot die from endometriosis. The condition is painful and can lead to infertility but does not cause death. There is no cure, unfortunately but there are treatments.
You can read more on our endometriosis page here : http://www.empowher.com/media/reference/endometriosis#definition
Anon - why are you asking this question? Do you have endometriosis and worry that you could die from this condition?
May 3, 2010 - 1:42pmI am curently undergpoing treatmment for endometriosis but so far nothing has changed. Sex is still so painful, my left side is always in apin and I have a permanently bloated belly to a point people think i am actually pregnant.
May 23, 2011 - 10:41amMy hopes of having my own family are shattered due to this evil disease, Having intercourse is a no no at the moment because I just cant bare the pain./ I feel my quality of life is very poor as I am in pain every day and can no longer do the hthings I used to love. I ahve to take time off work too. I sometimes think I would be better off dead.
Hi Annie,
May 23, 2011 - 12:05pmI'm so sorry you are dealing with this nasty disease! I also have endometriosis I've had it for many years and it's been pretty aggressive the last 6 years. I've had at least four surgeries to remove it and am looking at another one in a few weeks. I know exactly what you mean about the pain, bloating, etc... my worst pain is on my left side as well. When it's not sharp pains it's a dull pain that is ALWAYS there. Do you know what stage of endo you have? Your right it does impact our lives and many times just consumes it but don't give up hope. I can say that because I'm where you are right now, think of the things that make you happy and focus on that - it helps!
What type of treatment are you undergoing right now? As I mentioned I'm having another surgery in a few weeks to remove the endo that came back again! I've got great doctors that are treating me, but this disease is so nasty I HATE it!! I also have the support and love from my family, friends and co-workers. If it wasn't for them I don't think I'd be able to deal with this on my own. Who's helping you?
You are not alone you have a great community supporting you here at EmpowHER. I noticed that you are on the endometriosis suffers group - ask questions or post concerns in there - I'm sure the ladies in the group will provide some answers/support as well.
Please feel free to ask me any questions.
Take care and let me know how you are doing with your treatment.
Angelica
I had a colonoscopy done at 40 because of a family history of colon cancer. I had surgery in May 2011 because my sigmoid colon was severely narrowed. It was biopsied and was endometriosis! I had 8 inches of my colon removed. So no, endo won't directly kill you, but if it is affecting other organs it can be very harmful. I personally had no symptoms of endo, so it was to me nothing short of a miracle that I am still here! I did have a lap in 2008, and some endo was removed, but my doctor did not recommend any treatment at that time. He now is talking about lupron and I'm not sure what to do. Has anyone tried depo provera instead? Thanks for any input.
June 8, 2011 - 11:12amJacki
how long does it take for symptoms to reapper after a laparoscapy i recently had surgery for this and it seems like im still in pain i started my first period since my surgey but i only spotted and it went away is this normal
September 11, 2011 - 8:32amWe travelled out of state to vital health in san jose, ca for our teenage daughter's surgery. It took her about 3 months after surgery for the pain to subside. She is currently also attending pelvic floor therapy. I would highly recommend pelvic floor therapy as part of your endo treatment plan.
October 16, 2011 - 9:05amHi Anon,
October 17, 2011 - 10:02amI'm glad your daughter is doing better! I agree, pelvic floor therapy has also helped me out - especially with the spasms.
Thanks for sharing with us!
Angelica
Hi Anon,
September 12, 2011 - 2:15pmHow long ago did you have your procedure? Can you be a little more specific on your symptoms (example bloating, sharp pain,etc)?
Thanks,
Angelica