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Re: Water on the Brain, What ARE Probable LIFE Outcomes ??

By Anonymous February 22, 2016 - 7:02pm
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Have read some stories about
-"Comforting Children as they Die.";
-"Doctors can do NOTHING.";
-"Treatment WILL cause 'Collapse' of the Brain."

NOTE: "Birth date" DOES NOT ALLOW Mine !!

What is "Expected" Life Results of such a Baby ??


Related Back Ground/ HOPE

I DO have this Condition and have been Diagnosed at 3 1/2 (40mo).

My Bleed is from MAIN Arteries in the RIGHT Side of my Brain (Between the Lobes).
The "Disabilities" that I face, are MOSTLY the REACTIONS of OTHERS.

Being in the Hospital (Under Observation) Every few weeks,
- Mostly due to "Given less than 1 hour to live" and "Doctors can DO NOTHING" !!

- Seems the 'Doctors' DO NOT KNOW how they Interact !!

The Number of Things that I am NOT ALLOWED to DO !!
(Drive; Machinery; Chemicals; Hazardous Goods (ANY); Ladders; Medical Assistance; Diving; and ...)

Doctor's Suggestions (That I REFUSE to )
A) Stay in Hospital to Die
B) Go Home to Die
C) Brain Operation with GREATER than 90% chance of PERMANENT PARALYSIS of Left Side.
Also GREATER than 40% chance of BRAIN "INFECTION" (Besides the Paralysis)
(ALSO GREATER than 90% of COMPLETE "Explosive Failure" of Operation in 15 yrs)

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HERWriter Guide

Hi Anon

Thank you for your post!

How old are you now ? Are you mobile and can you care for yourself? Who is caring for you in general?

Water on the brain, also known as hydrocephalus, is defined by theNational Institutes of Health (NIH) as “a build up of fluid inside the skull, leading to brain swelling.” The fluid in question is cerebrospinal fluid (CSF), which normally cushions the brain and the spinal cord; the CSF also delivers nutrients to the brain, and transports the waste away from the brain. A patient with water on the brain, however, have either a blockage or overproduction of CSF; the excess of CSF puts pressure on the brain, which can lead to damage of brain tissue.

The Mayo Clinic states that one out of every 500 children are diagnosed with water on the brain. The disorder can be present at birth or symptoms can develop slightly later; the damage, however, starts while the child is developing in the womb. If water on the brain is left untreated, the death rate is 50 to 60 percent, according to the NIH; however, the condition can be treated by relieving the pressure, either through surgery or a shunt.

Water on the brain can be present with other conditions, according to the NIH. Some of the disorders start when the child is in the womb, like myelomeningocele, which is the incomplete closure of the spinal cord. Brain injury, trauma or bleeding in the brain can also occur with water on the brain. Other comorbid conditions include central nervous system (CNS) infections, like meningitis and encephalitis, and subarachnoid hemorrhage.

According to the National Institutes of Health (NIH), USA, approximately 700,000 American children and adults live with hydrocephalus. Hydrocephalus is also the leading cause of brain surgery for children in the USA. The NIH adds that over the past 25 years death rates linked to hydrocephalus have dropped from 54% to 5%, while the occurrence of intellectual disability has dropped from 62% to 30%.

You can learn more about the causes of hydrocephalus and the long term outcome for children born with this, at the following link : http://www.medicalnewstoday.com/articles/181727.php

Obviously you need a game plan - who is working with you on a plan of care including your medical and emotional needs?

Can you tell us more about your general life so we can help you more? Read more here: http://www.empowher.com/water-brain/content/hydrocephalus-or-water-brain-excess-cerebrospinal-fluid


February 23, 2016 - 6:52am
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