Hello, My name is Joan. I am a 54 year old woman that has endured severe vulvodynia for over one year. It has gotten to the point where my labia has fused, and now my clitoris is beginning to fuse.
I have seen 13 doctors in an effort for answers. Dermatologists, Gynecologist and Urologists. I usually reach a dead end and am sent on to someone else. I have had two biopsies of the tissue that only show chronic inflammation. I think I have tried every steroid cream on the market. This helps somewhat, but the pain is almost unbearable at times, It feels like someone is holding a match to my vulva.This has also affected my urethra, it sometimes bleeds. Sitting takes great courage, I only sit if I need to get in the car. Wearing underwear is reserved for leaving the house only. I am isolated and appropriately depressed. I have not been able to have any kind of sexual relations with my husband because of the clitoral involvement. Fortunately he understands as one look at my tissue makes him
cringe. He can see the pain I am in. When I do sleep with the help of a sleeping pill my husband says I moan.
Because of the NVA I now know there are options I have not tried. I have an appointment from the list of names given to me. I pray that there is something that can give me my life back. By the way I am using the computer from my bed lying on my side. Ice packs are my best friend.
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