I have stage 3c, grade 3 ovarian cancer, I was dx in 5/06 and given a prognosis of 5 years.
I have had 18 double rounds of chemo and I'm waiting for the next round.
I started a cancer support group in my area, since there were none. There are all different types of people attending, but my purpose is to give them a place to vent every month. Women with ovarian cancer don't have many options, since it is usually detected at late stages. Please read up on the symptoms and pass them on to someone you love.
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Hi noralachance,
What a wonderful way to help others, through starting a support group in your area! I would love to hear more about this: how many people attend, what they feel they need from the group, what are their primary worries and concerns, hopes and dreams?
I would also love to hear more about your story..the title was cut off. How are you feeling after your treatment? It sounds like you have a lot of wisdom to share, and I hope to hear from you again soon.
Take care,
Alison
Hi Nora,
Your journey is incredibly compelling. So many of us, when faced with such a diagnosis, would turn inward. Yet you turned outward, focusing not just on your own treatments and prognosis, but on helping other women who are in the same situation you are.
How long has it been since you started the group? How many women participate? Have you found that it has taken on a life of its own now, helping women that otherwise you would never even have met?
And I would like to echo Alison's request for more of your personal story. How did you find out about your cancer?
For others who would like to take Nora's advice and read up on symptoms of this disease, please visit Empowher's Health Encyclopedia:
http://www.empowher.com/media/reference/ovarian-cancer
Take care, Nora, and please let us hear more from you.
Nora,
I am a loving husband and caregiver. I also would like to hear about your challenges and successes. My wife is in a very similar situation, but she is only on her 5th round of chemo. She just recently joined a local support group. She is finding it very rewarding.
We benefit from other stories tremendously. Please continue to share....Mark & Susan from LA.
Hello I was reading your post and seen that you was dx in 5-06. My mom passed on mothers say 06. She was dx in 01-01. She was a tough cookie and never gave up. Even when they told her there was nothing else they could do. I stayed with her the whole time and there in nothing I would change. I miss her dearly and love her so much.
Tiffnay
Wow:
I cannot believe how many of you have left such wonderful comments. Thanks so much for the encouragement. Don't be fooled, I am not always this positive, I have my down times just like everyone else, but I do have good times as well. Like last night. My support group had nine people show up. I started it in February and each month only had 2 or so people. We even lost a member 2 weeks ago and this month 9 showed up. I was so pleased and I let everyone know. My story is not really that much different from anyone else on the journey. Many of the people in my group actually believe that got cancer because they needed a wake up call. I don't think I needed a wake up call or think I needed to get cancer for any reason whatsoever. I did all the right things, ate right, breast fed, veggie for 10 years, drank tea, and still got hit by the cancer bus. I don't know what the future holds. Right now I have been off of chemo for 18 months. I have a mass on my colon and omentum but they are smalll enough not to be blocking anything so for now it's a wait and see situation. I pray for everyone pained by this disease every night and wish you all good health again. Whether we join or not, life is going on without us, so we might as well stay in the game as long as we can. Take care. Love andhope, Nora