share: My daughter hurts and feels alone.

Hi Castleinthesky

Thanks so much for contacting us and welcome!

I'm so sorry your daughter is going through something like this. As with any child who has a health condition, they often feel they are alone in the world and that no other kid is like them. We all know this is not true, but kids often feel isolated and alone when it comes to things like this.

Is she not receiving any treatments for her Fibromyalgia at all, or has nothing worked? There are many treatments available and you can take a look at them all (as well as doctor advice, articles and the experiences of others) on our Fibromyalgia page here: http://www.empowher.com/condition/fibromyalgia

We also have a new Fibromyalgia Group that we'd love you to join:
http://www.empowher.com/groups/fibromyalgia

I think it's also a very good idea to contact the National Fibromyalgia Association here: http://www.fmaware.org

They can put you in touch with a chapter or support group near you so that your daughter can attend some meetings and see that she is not alone. Ask if there are other children/tweens/teens that are members. This will assure her that she is not alone.

If her doctor is unwilling to discuss more treatments with you, consider changing doctors.

Her best advocate for now is you and you sound like you are taking great care of her and being a tremendous support system. She is lucky to have someone like you. I'm sure this is also hard on you and joining a support group will also ease your burdens, as you reach out to other caregivers.

Will you check into this and let us know how it goes? And will you update us on how your doctor feels about treatment?

I wish you and your daughter the very best - this is really hard on both of you. As a mother myself, I know that the pain of our children is like a spear in our hearts and we'll do anything to help them.

I'll be looking out for your next post,

~Susan

I just saw your post and see that it was about 6 months ago. How is it going? The advice you were given was really good. Fibromyalgia is dreadful to deal with as an adult. Multiply that a few times to get a feel for what your daughter is going through. Add to that the other factors and you have a situation that screams for help. A support group for her is critical, and being around people her age going through health problems. It would be nice to have a buddy with the same condition, but not necessary. It may benefit her to share that other young people have health problems that other youth and adults & doctors don’t acknowledge nor understand. I’ve met two young girls at support groups over the years and I wish I had their information to put you all together. I know both girls mothers could find no one else their daughters ages going through the same thing. This was many years ago and then doctors refused to acknowledge it. I’d like to believe things are better now. Some of the greatest help many of us received was in the support groups. And I don’t want to scare you but I feel the need to say this. Growing up is hard enough for young people, add her problems on top of that and she may isolate and feel hopeless. I would strongly suggest you find help in your area before she has suicidal thoughts. And you need help too because this can’t be easy for you to go through and watch her in pain. Please keep fighting for and with her! God bless!