hello my name is mikki
IM 49 yrs old , puertorican whose family history consist of 9 diagnosis of breast cancer.
Four suvivors including myself. I was in the military active and reserve for 11yrs.
when I started getting sick really bad migraines so I thought ended up it was a brain tumor pituitary adenoma. I was getting really sick between living in a shelter and moving into my apt. I settled into my apt send my kids off to school started working . I had a counselor who would visit me and insisted i go to a doctor,
In the mist of this diagnosis my background soldier, domestic violence ran to a shelter the whole time still in uniform going to the reserve and saving my checks no longer homeless medical problems became intense. On standby to go to desert storm thank god i was diagnosis right before had to get out. I learned you can run but you cant run from within it stops you dead in your tracks.
2005 , I was losing so much weight my job though i was on a diet , i went to endocrine for a follow up because the dr. said something is not right. When I went back she had moved to newjersey. A new doctor saw me i said im losing weight ect is it my growth hormone , he said no i dont know what is wrong with you but its not hormonal. WRONG MY PATHOLOGY REPORT TUMOR MADE UP OF ESTROGEN . my body keeps blinking and i have to fight to keep the light on.
Im 45 now and for years i have been going for mammo's cyst three oclock left breast. I had fibrocystic breast . I was set up for biopsy aspiration but the cyst was solid biopsy schedule , the doctor cut at 6 oclock not 3 therefore removing nothing . 2005 the cyst is biopsy again and a 2.5 found in the breast tail.
here we go its Cancer i take off running 2 opinion , 3rd opinion, mri of the breast yeah dcis in both , my life is anything but boring i end up at MEMORIAL SLOAN KETTERING. BIlateralmasectomy, chemo, breast reconstruction to breast implants. Chemo sucks, i thought i look bad with acromegaly that went out the window ,when i look in the mirror no hair , no eyebrows, no eyelashes, i look like potato head without the accessories. Memorial sloan is so caught up in its name the nurses are great , love my plastic surgeon DR.JOSEPH DISA, but when my breast were remove the breast fat in my right breast was just pushed aside and left inside of me. Dr called me the night before do you want to remove both breast are you sure , my response are you kidding i have dcis in both i came to you with mri results , which i had done again, at memorial brought you the biopsy slides everything you need yes both breast. I was never told till 2 years later by my plastic surgeon for him to shedule for liposuction to remove the fat. never had it done there was scheduling conflicts and when i tried my job change insurances. I go to the VA hospital my oncologist send me to they surgeon ,who told me why don't i go from saline to silicone we will give you bigger breast . I explained about the breast fat they say oh no you were probably heavier at one time. We will give you new breast and remove the fat. I was humiliated my response was I don't want bigger breast I don't work on a strip pole.
Im a paranoid patient wondering is it normal for ovarian cyst never to disappear .
To top it of im brac 2 positive and don't trust having them. all my test negative ca125 ect, im menopausal since june no menstral. My primary say they are too small to take out 1.4/1.5 centimeters. I go through headaches , vomiting to the point i black out ,and now take imetrex injections, my chest muscles become very painful with spasms and under my armpits, its like pms really bad , but i dont have breast. Before I was diagnosis my cpk was 700 it went down. but in april 09 it was going back up170. Is there a connection because i couldnt get diagnosis but the cpk was the only abnormal test , and its working its way up again. Should i have my ovarian cyst remove to beat the turning into cancer.
I hope my experience helps someone always keep an updated copy of your medical records, for second opinions, listen to your body if you feel there is something wrong you could be right. If you don't feel comfortable with a doctor change doctors. Do your research just because a hospital is reputable doesn't make it better then your prefered one.
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Add a Comment35 Comments
Thanks, Mikki. We hope you have a wonderful holiday too. Pat
December 21, 2009 - 5:27pmThis Comment
Thanks for your great advice Mikki. I feel proud of you because of the help you render people here by sharing your own painful experiences. I am happy that you found some other doctor who could understand your actual problems. My best wishes to get well soon.
December 1, 2009 - 12:42amThis Comment
Mikki,
Thank you so very much for writing about your experiences here on EmpowHer. One of our founder's main missions is to help women learn from one another by sharing what they have been through.
You have certainly been through a lot, and I am impressed that at every turn, you kept on working your way forward, even when your first doctors couldn't figure out what was wrong with you. Here's a round of applause for doing such a good job of being your own advocate!
What does your current doctor say about your ovarian cyst in terms of the future? Is your primary care doctor a family doctor or an ob/gyn?
November 17, 2009 - 10:21amThis Comment
Thank you for responding, I keep going life is a battlefield. My primary say they are too small for a procedure and she is the one who refers me to my gyn . I am being monitor my oncologist is sending for a pet scan due next month i wait and see what lights up the hot spots . if my menstral does not return then i will go to my gyn to go over my results and take it from there.
mikki
November 17, 2009 - 1:31pmThis Comment
Mikki,
It sounds like you have a good plan of action. Our fingers are crossed that everything goes well. Please come back and let us know what you find out after your PET scan. Thank you again for writing.
November 18, 2009 - 9:04amThis Comment
HI DIANE
I HAD THE PETSCAN DONE AND FOUND INFLAMMATION OF THYROIDS SHOW UP.
THE DOCTOR SCHEDULE ME FOR THYROID ULTRASOUND, THYROID BLOOD TEST,
AND SCHEDULE APPT FOR ENDOCRINE. I HAVE THE ULTRASOUND TOMORROW 12/31ST AND LET U KNOW FROM THERE.
HAVE A HAPPY NEW YEAR.
MIKKI
December 30, 2009 - 8:33pmThis Comment
Mikki,
I'll be so eager to hear what the thyroid ultrasound, blood test and endocrine appointment show you. It feels like you might be getting close to getting some answers. Thank you for keeping us in the loop! And I hope 2010 is a healthy, happy new year for you.
Diane
January 1, 2010 - 9:22amThis Comment
THANKS DIANE HAPPY HEALTHY NEWYEAR TO YOU TOO
January 2, 2010 - 6:45pmIM NERVOUS ABOUT THE THYROIDS I HAD THE ULTRASOUND DONE THEY WERE SAYING THINGS I WAIT TO SEE THE ENDOCRINE DR BEFORE I REACT ,
I DID NEED A CUP OF STARBUCKS COFFEE VANILLA LATTE DOUBLE SHOT LOL
TO GET ME THROUGH THE MOMENT
This Comment
Mikki,
I can tell that even if you have some nerves about the thyroid issue, that you're doing well -- because you made me laugh. But seriously, you're right to wait to see the endocrinologist before you jump to conclusions. Thyroid problems are solved in a lot of different ways, many with medicine. I will be eager to hear what your next step is.
January 4, 2010 - 8:29amThis Comment
HI DIANE
January 9, 2010 - 10:53amHOPE ALL IS WELL WITH YOU.
WELL I WENT TO ENDO AND MY BLOOD TEST ARE NEGATIVE , SO DID THEY JOHNNY ON THE SPOT AND THE BIOPSY NEEDLE IN THE NECK SONOGRAM LEADS THE WAY IT WAS DONE 4 TIMES WITH A 27 GAGE NEEDLE IT DIDNT HURT TILL THEY START POKING
THE SITE , DR HE'S FUNNY U HAVE BEEN THROUGH ALOT MORE THAN UR SHARE LUCKILY ITS ALL TREATABLE . THE DR SAYS DONT WORRY WE GOT THIS WHATEVER THE OUTCOME ITS TREATABLE. I WAS STRESS BUT GO THRU IT AND WAS HAPPY THAT I STAY ON TOP OF MY APPTS AND TAKE CARE OF MYSELF OTHERWISE THIS BODY WOULD GO KERPLUNK LOL.
MIKKI
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