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Anonymous

i'm personaly had two operation for a this type of cyst; one at the age of 11 and revently a the age of 35.
both operation where succussful, however the second had the advantage of time. By which i mean brain surgery has developed to a far greater degree and with the use of MRI position and miniture lasers its a far safer procedure than ever.

Anonymous

It's amazing what they can do today. I hope yours were successful. I had to have a shunt put in after my surgery and the shunt over drained for 6 months which left me with a sagging brain and a chiari malformatio (brain herniates into the spine). So I still have problems and am facing another potential brain surgery in the future to correct the chiari, with hopes that it does not make the sagging worse. Where was your cyst? Did they remove it or do you still have it? How are you today?

Thanks for your feedback,
Maria

Anonymous

Hi

I thought I would just update you, current I’m nearly four months after surgery and have been back to work, as a web programmer, for nearly two months. I would have been back to work earlier, and in fact I was back after a month. However, this only lasted a week until I got complication; Chemical meningitis possible aggravated by an infection, this cleared up after a stay in hospital.
Thought I did catch an infection for my local hospital, before I was transferred to the specialist hospital in London; the National. This secondary infection has cleared up, eventually; after a case of thrombosis thought. Right now my third nerve palsy is improving, especially in the last couple of week. Of course it’s never that simple, as I now have to cope as my brain returning to a more normal state, and at a quicker rate; which is traumatic in it’s self.

My future is uncertain as I’m not sure, however I will ask if I can be referred to a neuro-physiologist when I next see my specialist. But the point is I survived and I still recovered very quickly; it’s unlikely I be 100%, but then again I never was so It all up hill from now.

Anyway I hope all goes well for you and just remember the best route to recovery is to stay positive and active; being fit helped my cope with the surgery.

Pat Elliott

Hi Anon - Thanks for getting in touch again and providing this update. It's good to know you're back at work and moving forward in your recovery. I love your attitude and that you're taking the time to inspire others. Best wishes to you, and please stay in touch.
Take good care,
Pat

Anonymous

My 4 year old son has a posterior fossa arachnoid cyst. He has global developmental delay, didn't walk until almost 2 and qualifies for pediatric therapies (pt, ot, speech) across the board. He has muscular problems and has now been found to suffer focal seizures. Problem is that I can't find a neurologist that believes this to be the cause of my sons problems. Do you know of any pediatric neurologists/neurosurgeons we could turn to? Thanks in advance.

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