Facebook Pixel

Fibromyalgia: Preparing for Misdiagnosis

Rate This

Fibromyalgia is most often diagnosed in women ages 20-50 and almost always coexists with a number of debilitating symptoms. Women with the muscle condition frequently face chronic fatigue, headaches, and in some cases, depression.

Because the muscle condition is defined solely by its symptoms it often goes undetected and misdiagnosed. These symptoms can overshadow and ultimately sideline the condition making it difficult to remedy and almost impossible to entirely relieve.

The most common correlating symptoms include, but are not limited to, the following:

• Fatigue
• Depression
• Endometriosis
• Headaches
• Irritable Bowel Syndrome (IBS)
• Lupus
• Osteoarthritis
• Restless Leg Syndrome (RLS)
• Rheumatoid Arthritis

While symptoms can be both the cause and result of having Fibromyalgia, it is often a long and exhausting path to diagnosis. Many times you will see a number of doctors before reaching a definitive conclusion. Not to say that all symptoms lead to the diagnosis of Fibromyalgia but if pain persists it is important that you do not settle for the misdiagnosis of your symptoms but educate yourself on the possibilities of more serious conditions such as this.

One doctor you may be referred to is a rheumatologist, specializing in arthritis and the inflammation of joints and muscles this doctor may misdiagnose you with one of these conditions which are associated with Fibromyalgia but not the condition itself. While the doctor may be able to ease the pain slightly you are ultimately without effective treatment and support.

Fatigue is the most common symptom associated with the dull, aching pain that comes with this condition. Those with Fibromyalgia often feel tired and un-rested even after what is a typically adequate amount of sleep. Misdiagnosed as a sleeping disorder, Fibromyalgia hides under the condition it has created and in turn alleviating only a sign of the bigger, more debilitating problem.

It is important to be prepared for a long and arduous road to living comfortably with Fibromyalgia. You are the expert on the explanation of your symptoms.

Add a Comment6 Comments

EmpowHER Guest

Diagnosis is common with Fibro because it seems to be a little understood problem. How frustrating and maddening for those experiencing it. Here is an article from a wellness website about misdiagnosis and treating the person rather than the disease!

February 9, 2010 - 7:22pm
(reply to Anonymous)

I can certainly agree with this, and the article by this doctor. As I said in my previous post, I hate the idea of being diagnosed with Fibromyalgia, and was treated for this by a specialist, but given Xanax as a help. I do not see how that would cure my lower back pain, abdominal pain, and fatigue after having a Hyst., and realized these complications. Xanax? This will cure me? I am being sent to a doctor, and feel a 'cover-up' for what is really wrong. How about prolapsed bowels and other organs? Will Xanax solve this? "Yes, you have Fibromyalgia", this specialist of Fibromyalgia said. Yet, was he treating the 'patient' or just 'diagnosing' me to give me some kind of disease/syndrome? I am led a DIRECTION AND COURSE now to take medication for Fibromyalgia when this is not what is wrong. We know our own bodies, and I know prescribing Xanax will not cure my physical horrible back pain when I bend over, my awful abdominal pain, and please tell me, if anyone knows, how an anti-depressant/anxiety pill would cure this? I am one of millions of women out there who are misdiagnosed, and treated for something else, and is it to be, by doctors, "Oh, this will soothe her by giving her some name for an illness." What a broad term Fibromyalgia is too. Is it the new term doctors give when they cannot think of anything else to tell women? "There, that is it - I will prescribe Xanax for her, and maybe that will keep her quiet. How cruel. Don't get me wrong here, either. I fully believe a name should be given for the symptoms of Fibromyalgia. But do not, dear doctors, diagnose, and not treat the individual patient. I am screaming for physical diagnosis after a Hyst. gone bad, and my prolapsed organs cannot be cured with a pill...

February 10, 2010 - 9:34pm

Regarding Fibromyalgia - I was diagnosed with this, but only had awful symptoms after a Hysterectomy. I was astounded that I was put with a doctor who a specialist regarding this, and do not deny the disease/syndrome exists, but I hope this is not a way to pass off other problems (physical) which women have after a Hyst. by calling it, and saying, "Oh, you have Fibromyalgia"... My back problems and fatigue, and feeling awful only started after my Hyst., and again - just do not want to have what a doctor did wrong to me passed off for another 'syndrome' to give to women when they made a mistake by even doing a Hyst. in the first place. My point being is that I refuse to accept doctors can tell me I have some other disease of Fibromyalgia when I would have been fine if I never had the Hyst., and my symptoms are all and only after this hideous Hyst., and destruction to my well being, and what? I am to now just deal with another doctor to be treated for Fibromyalgia? What are these doctors doing?

November 13, 2009 - 2:32am
EmpowHER Guest

A new book "RECOVERY FROM CFS - 50 Personal Stories" is available from Amazon. 50 stories of recovery from men, women and children from 6 different countries diagnosed with CFS, who have regained good health and returned to a normal life. They describe how they recovered and recommend therapies, books, websites and some even give contact details for those needing support. A positive and uplifting book full of resources for anyone with CFS or their carers. FREE stories from the book available from www.alexbarton.co.uk

November 13, 2009 - 1:37am
EmpowHER Guest

Fibromyalgia is typically flouride poisoning, our environment's biggest toxin. Iodine in the bodyis prelaced by the flouride, so it's important to take daily iodine (Lugal's solution)
-- It is important to be prepared for a long and arduous road
This kind of attitude contributes to keeping people ill.

November 12, 2009 - 5:52am
EmpowHER Guest
Anonymous (reply to Anonymous)

Flouride poisoning? Where is your evidence for this?

November 12, 2009 - 3:13pm
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy
Add a Comment

We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.


Get Email Updates

Related Checklists

Fibromyalgia Guide

HERWriter Guide

Have a question? We're here to help. Ask the Community.


Health Newsletter

Receive the latest and greatest in women's health and wellness from EmpowHER - for free!