May 20, 2013 - 6:52pm
I cannot believe I found this page. I was just crying my eyes out in desperation on google trying to find relief!
My fiancée has SLE. We've been together for about 4 years now and I love him very much.
He knows I am not ready to get married but he doesn't know that my hesitation is really caused strictly by his illness. I am overwhelmed. In the 4 years we have been together, I have taken on the role of wife, breadwinner, homemaker, and mother. I work over 40 hours a week every week so he can stay home. His last two jobs resulted in a very expensive ambulance ride due to what I would call a stress seizure; his body shuts down from the stress of work and pain. We just decided to have him stay home, which he loves. He cleans, but not much. His mother also has SLE and never really cleaned house when he was a child due to her pain, so, he's lazy on top of his disease. We have a 2yr old son together. The child's developmental stages are slacking because my fiancé really doesn't teach him anything.
He's always ill, can't go outside, can't do anything but sit. I've always tiptoed around his disease, like just caretakers here: putting my feelings aside, doing his way, making sacrifices because its not his fault. He has to go through more than i, HE is the one suffering.
But now, our sex life is being affected more than ever. it took me almost 20m to get him interested in sex last night and once we got started, mid way though he stopped, fell over and started panting/shaking in pain. I bawled feeling awful that I pushed so hard to get my way, and I bawled in self pity.
I can't sacrifice much more! I feel like my best years are behind me and I haven't even lived yet.
I am very afraid to confess my feelings to him. He is very sensitive about his illness and will defiantly be very hurt by whatever I say, however I say it. He is self-loathing because of all of this and my guilt is overpowering every other logical feeling.
What do I do! I'm too young to be this old!
i'm so heartbroken