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Arachnoid Cyst Support Group Join this Group

Feeling very alone

By January 9, 2011 - 4:43pm

I was diagnoised with a Posterior fossa cyst 6 yrs ago, we found it when a doctor finally stoped looking at indivdual issues and looked at all of them. I was told as long as it didnt grow not to worry but with time the syptoms and the meds i was on got worse. A few mothes ago i was in my yard throwing up from a migraine. Docs order new MRI and it had grown a CM in a year, in one way i was scared and in another i was hoping that maybe we would take it out our drain ect...i am tired of being klutzy,headaches,migraines,tremors,weird speech patterns, forgetfullness (which is getting worse) cold extemities,hurting joints.
what is worse is that after living like this for years I looked at my husband (whom I love dearly) and said if I could end all this I would without hurting anyone.
I just feel so alone and misunderstood I feel like the doctors from walter reed dont really give a crap they arent the ones with 3 small kids at home and spouses gone so much.

sorry for rambaling just feel out of control and tired of chasing symptoms

By HERWriter Guide January 27, 2011 - 6:18pm

texasnessa - We haven't heard back from you since you first posted? How are you doing? We'd love to hear from you and provide support.

January 27, 2011 - 6:18pm
By January 9, 2011 - 10:04pm

I am so sorry you are going through this!

Have you thought about changing doctors? It is important that you feel like your doctor DOES care about you, your family, your life, your symptoms.

How long ago was your last MRI, and what treatment options were suggested?

January 9, 2011 - 10:04pm

Group Leader


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