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Did your endometriosis return after surgery?

By April 14, 2011 - 5:20pm

I've had three different surgeries to remove endometriosis, the last one required a complete hysterectomy (ovaries and uterus). I've been feeling bad again (abdominal pain, bloating, constipation, tired, etc.) and am starting to wonder if the endo is back? I just don't know how that's possible if I don't have anything in there to fuel the endo anymore. I am on hormone replacement therapy to help menopause symptoms but not sure if that would cause endo to come back.
Has anyone experienced the return of endometriosis after a complete hysterectomy?

By June 11, 2011 - 3:27pm

Yes it is completely possible that endometriosis can return after a hysterectomy, a lady I worked with in the military had this happen to her, as did my grandmother. My coworkers surgery was in the late 90's, she had endo in/on her bowels that returned and spread when she started taking hormone supplements to deal with horrible hotflashes and whatnot. My ordinary GYN that recommended pregnancy & hysterectomy after I was diagnosed. After seeing a specialist she told me that was the "old" way of thinking and that there is no guarantee either will cure endo, especially because we get so many additional "fake" hormones these days! hope you are feeling better!

June 11, 2011 - 3:27pm
By June 7, 2011 - 12:00pm

I am sorry to hear about your endometriosis returning. I can kind of relate.. I had surgery in December and with my next period all of my symptoms were back. This morning I went to the Dr. again and found out I had a couple of cysts on both ovaries. They are concerned about one of them because they could be a blood cyst which could be bad. I have to think this is all due to my endometriosis. My husband and I would love to start trying to have children, but it just seems like it's never going to happen for us. This disease is terrible and not many Doctors know much about it. I hope your surgery provides some relief for you!

June 7, 2011 - 12:00pm
By June 2, 2011 - 3:45pm

Update..went to the see my doctor looks like the endometriosis is back. Robotic surgery is scheduled for next Friday to remove the endo and scar tissue. I'm beyond frustrated and feel like this will never end!!
Would love to hear how others with this condition are dealing with it.

June 2, 2011 - 3:45pm
By May 24, 2011 - 5:22pm

Thanks Susan. Yes, please share your story. I know I'm not alone as I battle this nasty disease. Would love others support and how you are dealing with endometriosis.

May 24, 2011 - 5:22pm
By HERWriter Guide May 12, 2011 - 11:05am

Hi Angelica

Thanks for your post! We encourage our readers to share their stories so I hope that there are others out there who can talk about their experiences with you!

May 12, 2011 - 11:05am

Group Leader

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