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By November 20, 2011 - 4:51pm

i have been told i have fibro but want to know how many people may have something else going on. I have been to 9 doctors and they all seem to have different opinions as to what is really causing my pain. some just dont believe in fibro-guess being that u cant see it or test for it-it is not possible for this to be the answer. i also think that there may be some underlying cause for all the pain i feel. jsut not sure who if anybody to trust anymore. the only thing i know is i feel like crap and at the age of 41 there are days i feel much older. i also just left my job and have been having a hard time getting disability. if anyone knows or has any experience with these issues please let me know i feel alone on my journey but know there must be more out there feeling the same way.

By November 28, 2011 - 10:19am

I totally empathize with you. I am older (67) but at age 47 I was forced to "retire" from work I loved but could no longer do because of pain, physical and mental. I have fibromyalgia and it took 3 years to get a diagnosis. There really is no definitive tests but if you have some chronic underlying viral antibodies that I one thing that helped the doctors decide, for me, that it was fibromyalgia. I also has a number of abnormal tests, including 13 positive trigger points out of the 18. I also have degenerative disc disease and MG and CFS so it has been a trial sorting everything out. It has been one diagnosis after another that I am now afraid to go to the doctor! All I can offer, is moral support. There are some good pain specialists out there that specialize in fibromyalgia. It would be good if you could google a doctor in your area. He or she will be a big asset to you. It took me 2 years to convince my PCP to refer me to a pain specialist, but he finally did and I will never be sorry. He has been a huge help in the chronic pain and fatigue. I also have a awesome neurologist who understands. As far as getting disability, that could be a stickywicket. I was fortunate in that I got my disability within 3 months of filing, but I have had friends who needed a lawyer and many doctors in order to get theirs. Good luck with that. Hope some of this helps. And, yes, there are a lot of us out here who will be glad to support you and your efforts.

November 28, 2011 - 10:19am

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