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semi new to thyroid issues

By August 22, 2011 - 12:26pm

ok folks, heres my story in a nutshell. i was given a hysterectomy at the age of 22 years old. i am almost 34 now, in October of 2010 the doctors found that i had a thyroid issue. too low, then too high, now i am on 75 mcgs of synthroid. it is not helping one bit. due to being a military spouse, i have just been place at a new base and i have all but lost my faith in the doctors. i was a very petite,(105) pounds for all of my life except for when i was pregnant and had my one and only child. i guess what i am asking for is a little bit of help regaining faith in doctors and some help in navigating this condition. i now weigh 150 pounds, feel just crummy, ( as usual) and cant seem to just get my life back. is it true that it causes depression, fibromyligha, and nerve damage? this is what my shrink, and my doctors from the previous military installation have told me. uuuuhhh, HELP! ANY and all help will be greatly appreciated! thank you!

By August 22, 2011 - 3:14pm

Well steffiib, the first thing to ask is whether your thyroid disease is from Hashimoto's or Graves disease. Hashi's will attack your thyroid and make it underactive or hypothyroid (most of the time, but your thyroid can putter along sometimes and try to catch up putting you into hyperthyroidism as well) and Graves Disease leads to hyperthyroidism, but once they try to treat the overactive thyroid a hyperthyroid patient will end up hypothyroid. So, do they know what has caused yours? Also, how long were you pregnant and did your thyroid start acting up around that same time? (It is very common to start having thyroid problems during and after child birth)

As for regaining faith in doctors, it may just take some time to find a great doctor that is up on thyroid disorders. All three symptoms you listed can totally be attributed to thyroid disease, and it is remarkable that so many symptoms can come from this stupid disease yet everybody experiences it somewhat differently.

Are they testing more than just your TSH? For more than 18 years I was on Synthroid with a TSH averaging around 2.5 or higher. Since I have learned so much in these last few years, I know have my TSH under 1 and feel so much better. For each person, it will depend on what is your optimal TSH level, and how you feel. Some people can even feel perfectly fine with a TSH of 8, yet I feel like poo if it is over 2. There is just much more going on in the body than what the TSH alone can tell you.

I really feel for you, trying to get your life back. I have met so many people with thyroid disease since starting this chapter in my life, and it almost makes me angry that some people can so easily be treated, and yet for others like myself it is almost a daily battle. A battle to feel good enough to get even the smallest things done at times!

Let us know what all tests they have done on you in the last year (including any Vit D, any other thyroid panels or antibody testing) and let us know what your results were and what the ranges were. If you don't know, I would strongly suggest getting your records from the doctor. It can come in very handy to start charting your labs and checking out any correlations between how you feel and what your lab results were.

So, let’s start there and hopefully soon we can help you get back on your feet, and most importantly make that crummy feeling finally go away!

Best Regards,

August 22, 2011 - 3:14pm

Group Leader

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To explore and discuss the different treatments available for thyroid disorders, and to connect to and learn from other sufferers of the impact the thyroid can have on your everyday life.


Rockford, IL


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