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Restless Legs Syndrome Support Join this Group

RLS is real!

By November 12, 2010 - 6:57pm

HI, this is the intitial post in this new group. My name is Donna, and I have had RLS since I was 14 yrs old. I am looking forward to meeting other women here who have the same sleep issues. We also have "credibility" issues with RLS, unfortunately. There are even people in the medical field who do not quite believe that RLS is the sleep stealer that it is. So, how can we expect "regular" people not to be cynical about this strange sounding affliction. IF you have it, you certainly know that it is real, we do use the word "suffer" because we do suffer and struggle every day. There is no cure, nbut we who have RLS should never sway from raising awareness. Severe sleep deprivation is no joke. RLS in itself will not kill you, but the effects from it might. Sleep deprivation can cause lots of issues like high blood pressure, severe daytime sleepiness, lost relationships, loss of employment, etc. Tell us what RLS means to you, and if you have found us and have questions, please do ask. We are just getting started here, so let's see what happens. Welcome!

By November 17, 2012 - 9:04am

I know I have RlS. But the doctor I have been with doesnt know anything about this at all he just give me my medicine it was sifrol now mirapexin. Here in Sweden their not good on Rls. Those movement in head just happens once a month otherwise its in my legs. I havent gone further because I could live with it and I want to go on working at least one more year withot beeing home.Im 62 in 2 month. But my dr doesnt care if I dont go hard on him.

November 17, 2012 - 9:04am
By HERWriter Guide November 16, 2012 - 11:27am

Hi lill

Make you that what you have is actually RLS - the jerking in your upper body and face/head could be symptomatic of something else. Have you seen a doctor?


November 16, 2012 - 11:27am
By November 13, 2012 - 12:30pm

I have it now in my left foot.I wanted to rest after working today.Im sitting on my balkony for a while its cold outside but it helps.I know how it is.I only hope it will last till Im going to sleep.It feels good with cold now.But sometimes its better to take a hot bath it helps too.I can take it as long as it not goes to the whole body it does sometimes.It can make me move my head and into my face and arms too.But not so often.I dont let this hurt me I just go pn with my life and forget.The good times are so much better after.Iv learn to live with it.Its great to talk with people who can understand what it is like.

November 13, 2012 - 12:30pm
By HERWriter Guide July 1, 2012 - 6:32am

Hi All

What a great group!

I write an article on how real RLS is - you can check it out here: http://www.empowher.com/community/share/no-myth-restless-leg-syndrome-real




July 1, 2012 - 6:32am
By June 25, 2012 - 2:06pm

I hate to say, I used to laugh at my mom when I was a kid about her legs "jumping" all the time. I was a kid what did I know? I am 40 now, I dont have it as bad as she does but wow there was no reason to laugh!! I had to call her about a year ago and tell her I was sorry!! Now I have it! I only have troubles 5-10 nights a month, but wow I hate it already!!!

June 25, 2012 - 2:06pm
By January 28, 2011 - 2:07am

I started having RSL around the same time that i started having menopause symptoms. I haven't spoken to a Dr about it as I don't have a regular Dr. I looked it up on the internet. My legs cramp a lot while sleeping. This would wake me up and I would need to walk around in severe pain until it went away. I get terrible charlie horse type cramps. Sometimes it's only in my toes. Nevertheless it wakes me and I am unable to sleep. I also sometimes feel like I have ants or something crawling inside my legs. I twist and turn the whole night. I don't have it every night and on occasion it happens during the daytime too I'm learning how to deal with it and would love to find a natural remedy to help keep it from happening.

January 28, 2011 - 2:07am
By December 5, 2010 - 3:26pm

I came across this while checking something for my wife. I have RLS and my restless toes would not let me sleep. I also have Parkinson Disease being successfully treated with dopamine. My neurologist prescribed Requip XL for my RLS and it works!!! I started with 2mg, then 4mg, then 6 mg until the 8mg dose did the trick. Ask your doctor about it.

December 5, 2010 - 3:26pm

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This is a place for you if you are suffering from Restless Legs Syndrome, or RLS. If you are suffering from severe sleep deprivation because your legs will not let you lay still, this is the place for support and some answers. There is no cure, but there is more and more help out there to be had, and we can help each other. We will also be able to discuss many sleep disorders since RLS is diagnosed as a sleep disorder and a movement disorder. PLMD, sleep apnea, and plain old insomnia.


This Group is Open to all EmpowHER.com members