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Pulmonary Fibrosis: Do Family And Support Groups Help You Cope?

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Joan shares how her family and support groups help her live a full life while battling pulmonary fibrosis (IPF).

My daughter, she has a hard time believing that I am ill and she said, “Mom, don’t let them tell you, you are sick. You are just fine. You are doing great. You look wonderful,” but you know what, I’m making the both most of it, and I believe if you talk to yourself and give yourself that pep talk everyday it doesn’t mean that sometimes you get the feeling that, “Why am I doing this? Let’s just give up,” but then you turn around and you give yourself the pep talk and you get up and you go on.

I am not on oxygen yet. I am still going dancing and, you know, when I walk, if I run out of breath, I stop and catch my breath and go on. The best thing that ever happened is the Internet as far as the research tools that they have available to you, but the support group, we have a wonderful leader here in Arizona and I try and time my coming to Arizona for the winter so I am here for the October meeting and I won’t leave until I go to the meeting in April. The people at the support meeting are wonderful because they tell you who their doctors are, what they are doing for you, and so on.

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