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Choroid Plexus Cysts and My Scary Ultrasound

By Susan Schade
 
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It was a big day. I was pregnant with our first baby and we had an ultrasound appointment scheduled in the afternoon. Today was the day that we would (hopefully) find out if we were having a boy or girl.

We had a late Friday afternoon appointment, something that I had scheduled purposely so my husband and I could celebrate with dinner and then go home. Once in the ultrasound room, we were so excited. We held hands as we watched our unborn baby on the monitor. As our baby moved, it seemed unbelievable how developed the tiny features were. It wasn’t always easy to tell what I was looking at but our technician was explaining what we were seeing on the screen.

When she got to the head, she began the measurements and then matter-of-factly said, “There are choroid plexus cysts in your baby’s brain.” That was the moment that I felt like my breathing stopped. “Cysts in your baby’s brain” was all that I heard. “What does that mean?” We both asked at the same time. “I can only give you the information,” was her answer. She mentioned that there were some conditions where choroid plexus cysts are present in an ultrasound (like Trisomy 18) but she suggested that we contact my doctor for questions. But it was Friday evening and the doctor’s office would not be open until Monday.

We went to dinner as planned, but my husband and I were mostly quiet as we ate our food. Not quite the celebration that we had planned on. We were both anxious to get home and get online to research what we were told. We found quickly that having the access to so much information was more harmful to us than helpful. We were searching and finding all kinds of heart wrenching information on Trisomy 18 and other conditions. I cried a lot that night and during the rest of the weekend, unsure of what this meant for our baby and our family.

And we told no one. We hid our frightening news from the excited friends and family that called to ask about the ultrasound results. Monday morning could not come soon enough. I called my doctor around 5:30 when I awoke and left a message.

Add a Comment47 Comments

EmpowHER Guest
Anonymous

This really did bring a little relief... I was pretty scared and went through and Amino just this afternoon.

But I know I will sleep better tonight after reading this : )

September 20, 2012 - 7:26pm
Susan Schade (reply to Anonymous)

Glad to hear it was helpful.  Take care. 

Susan

September 27, 2012 - 9:41pm
EmpowHER Guest
Anonymous

I just found out last week that my baby girl has one on her brain. After 3 miscarriages, and no living children, it was hard to hear. I was so nervous for my scan, that I didn't sleep the night before. Since my scan, I've had a lot of good days, but there are also days like today where all I've done is lay in bed and cry. My ob has told me hes not at all concerned, and the ultrasound tech said in her 13 years of working there, shes always seen them go away on their own, and the babies never have any issues. My follow up ultrasound is in 3 weeks. I promise to come back, and let you know how it goes. I found this article very calming, as well as the comments. I pray that no one ever has to feel how I've been feeling since my scan, and hope that I have good news to share for others in my position as well.

February 27, 2012 - 10:01am
Susan Schade (reply to Anonymous)

I would love to hear from you again.  My thoughts and prayers are with you and your baby girl.  I know that it is near impossible to not worry but I hope that you can tuck away some of the fears away and enjoy your pregnancy.  Let me know how you are doing.  Susan

February 28, 2012 - 10:30pm
EmpowHER Guest
Anonymous (reply to Susan Schade)

I just got back from the appointment... the cyst was completely gone, and she looked perfect Prayer, and faith in the fact that God will carry you trough is all you need. I went in today with the faith that it'd be gone, and it was :)
The tech said, "I bet you're so happy to hear that it's gone! I soo wish we never had to even tell you about it. In my 14 years of working here, they have ALWAYS gone away!"
Thank you for sharing your story, it really helped ease my mind until my appointment. Also thanks to all the ladies who left comments. It's such a relief to hear all of the positive stories!

March 19, 2012 - 8:20am
Susan Schade (reply to Anonymous)

I was so happy to hear your good news!  I agree, you can never under-estimate the power of prayer and faith.  Best wishes and lots of luck!  Susan

March 19, 2012 - 3:39pm
EmpowHER Guest
Anonymous

We are expecting our third baby in June... a girl after having two boys! We are overjoyed, but that joy was clouded a bit when the ultrasound tech told us about two choroid plexus cysts on our daughter's brain. The did extensive measurements of everything else & brought in the dr. on staff that day in the Maternal Fetal Medicine office. (I'm 34, turning 35 in May which makes me "advanced maternal age") The dr. told us our daughter looked beautiful & there was little else she felt we needed to do. She said we had "no reason to worry". But you do worry. You worry until you get to see for yourself that these do in fact go away.

Thank you for sharing your story. I'm worried today, but reading your post really gave me some perspective.

January 31, 2012 - 11:51am
EmpowHER Guest
Anonymous

Thank you so much for this post. I had a routine 18 week ultrasound done and my OB told me everything looked fine. I switched doctors at 23 weeks because I just did not mesh well with my OB's personality and approach to patient care. Just last week my new doctor said it was time to schedule a follow-up ultrasound to make sure "the choroid plexus cysts were gone". This was new news to my husband and I and it was everything I could do not to go into hysterics in the office. I am 30 weeks along and I have my repeat ultrasound this week. I am sure everything will be fine but I am still nervous. Your post made me feel more at ease, so thank you.

May 17, 2011 - 11:35am
Susan Schade (reply to Anonymous)

Best of luck this week. I am glad it was helpful.

May 17, 2011 - 3:09pm
EmpowHER Guest
Anonymous

After finding out about a CPC at my 20 week ultrasound, I just wanted to let you know that my daughter is now almost 1 year old and is perfect. I hope others can get through it and know that things are generally just fine! :-)

September 8, 2010 - 1:30pm
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