Narcolepsy With Cataplexy Symptoms - HER Health Story - Julie Flygare

Rate This

More Videos from Julie Flygare 4 videos in this series

Narcolepsy With Cataplexy Symptoms - HER Health Story - Julie Flygare
Narcolepsy With Cataplexy Symptoms - HER Health Story - Julie Flygare
3 of 4 : Current video

Julie Flygare is a leading narcolepsy spokesperson, published author, blogger, yogi and runner diagnosed with narcolepsy and cataplexy. In this video she introduces herself and shares which symptoms she experienced before she was diagnosed.

I was diagnosed in September 2007 with narcolepsy with cataplexy and the symptoms I was having leading up to that diagnosis were excessive daytime sleepiness. I was getting really tired; studying at night, during my classes, during the day I had a hard time getting through class and had trouble driving with sleepiness. I was also having the symptom of cataplexy where my knees started actually giving out on me when I was laughing about jokes and also when I was annoyed about things and then that same little knee dip became a bigger dip and eventually I was actually completely collapsing to the ground when I experienced the motions. I was also having these experiences at night when I thought I had woken up and had people coming into my room to attack me, but I could not react to the attack and that is another I realized once I was diagnosed that is another symptoms of narcolepsy called sleep paralysis and hypnagogic hallucinations. I was really confused as my symptoms were developing, because I did not know what to make of them. My really vivid nightmares at night, I never really experienced anything like that before, but I just made lot of excuses for that, I thought this well may be go away. At one point, I asked my brother about it and he said, oh I had those same experiences in college and they will go away, so I said okay hopefully mine will go away. With the sleepiness, I just made excuses for the longest time and it was very hard to reach the point of saying I think this is a sleep disorder, it took years really and with the cataplexy when my knees were giving out with emotion, I thought that that was very strange always, it will felt like I was melting internally, so that always felt like a weird sensation and as it got worse, I got more and more scared about it.

Add a Comment1 Comments


I am so glad I found you! Thank you so much for your explanation for narcolepsy with cataplexy. I have exactly the same symptoms It sounds like my same exact story. It is a relief to here there is someone going through exactly what I am. I have met few people with this disorder but few that I have don't have the cataplexy. My narcolepsy is totally different as well. I don't fall asleep at any given min. I wake up with no problem and if I feel sleepy I can usually snap myself out of it depending on what I'm doing. It's good to here about someone that o can relate too because cataplexy has been the hardest to deal with. It's also hard to explain it to people. And Julie described it perfectly... Now I have references that I can show to family, friends, and most of all my family. I wish I could talk to her. Or someone that is going through it like we are. Thank you again for making people aware of this. I will pass it on

November 27, 2014 - 12:21am
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy
Add a Comment

Sleep Disorders

Get Email Updates

Sleep Disorders Guide

Alison Beaver

Have a question? We're here to help. Ask the Community.


Health Newsletter

Receive the latest and greatest in women's health and wellness from EmpowHER - for free!


3797 Health


2367 Lives


2198 Lives
23 lives impacted in the last 24 hrs Learn More

Take Our Featured Health Poll

Do you keep electronics out of your bedroom to help you sleep?:
View Results