Trigonitis and Diathermy

I had that treatment and it didn't work.

What helped me was stop eating milk and meat.

When I was diagnosed, my syntoms where so severe that the doctor though I had kidney stones! That was 4 years ago. Today, I have no syntoms, as long as I stay away from meat and liquid milk. I want to be clear: I have no syntoms at all.

Hi Eliz92757 - Happy to listen, anytime. I'm glad to hear you have a great primary care doctor, that makes a world of difference. I have a great one too.
In terms on the chills you experienced, when a bladder infection spreads to the kidneys it can cause chills...and it can also cause a fever. Here's a link with a lot of helpful information: http://www.nlm.nih.gov/medlineplus/ency/article/000521.htm

It might be helpful to join a local support group where you can talk with others in person and not only get support but help give it as well. I found a list online that has a wide variety of groups. One that struck me that you might like was: Uniquely Woman: Counseling/support group for women meets at 6 p.m. each Mon., 1900 Church St., Suite 300. $10 per session. 321-4200. Will you give the list a look? http://lindaarbaughpatin.com/supportgroups.html#p

Hi Eliz92757 - After 53 years of bladder problems I think most of us would be sick of it all too. I'm concerned about your statement that you feel your doctor doesn't listen to you, and that you have not seen a physician since September 2009. Have you given up? Do you need support or ideas on how to get your current doctor to listen to you? Do you want to change physicians? What city/state are you in?

In other words, how can we help? Pat

Hi,
I'm a newbe here. I've had bladder problems since I was 14 years and now I'm 67, so that is 53 years. I had dilations for 18 years, because I couldn't empty my bladder. MY bladder has torn 3 times from not empting. I moved out of state and stopped the dilations, and gradually got well. For 13 years without any bladder problems. Then I had hysterectomy in 98. I had a fibroid tumer the size of a volley ball, and it layed across my belly, so the doctor had to cut my womb across in three places. He also cut the tubes or whatever they are named from the kidney to the bladder. I left the hospital with and infection, and couldn't empty my bladder. I've had problems ever since. In 2002 or 2003 Dr. K put medicine inside my bladder that was suppost to peal off the lining to grow a new linning, he never put a name to what I had then. It didn't work. I had posterior repair after that another doctor. Then in 2005 Dr. K finally told me I had trigonitis. He put a bladder cocktail inside my bladder to peal it off again. I thought I would die, and he would not give me any pain pills! Heparin SOD 500/ML.INJ—blood thinning medicine,Gentamicin 40MG/ML.INJ—antibiotic used to treat serious bacterial infections,SOD Bicarb 8.4% INJ-- sodium bicarbonate-this is to help get to the lining of the bladder,Marcaine 0.5% INJ--antibiotic,Solu-Cortef 100MG Mill—hydrocortisone.
That was October 2008. It didn't help at all. Then Dr. K did surgery urethral support sling/mesh and rectocele/mesh February 2009. I didn't leak for almost a year, but now I have no control when my bladder gets full at night. The last time I went to Dr. k he put me on Sanctura XR 60 mg. Since he ran that whatever over my belly and I wasn't holding any urine he thought my bladder was empting, but there are many times I can't empty, and I told him. I took it for over a week, and I didn't hurt as much, but then I got where I was only trickling pee. I stopped the pills, and I have not been back to him, and that was September 2009. I'm taking Trimethoprim 100 mg one every night, and Phenazopyridine 200mg one every morning. I feel he doesn't listen to me. I'm sick of it all.

(Note: Physician name removed by EmpowHER Moderator)

Hello Mary, and thanks for writing. You're right, it is hard to find a lot of information on trigonitis, and that just adds to the frustration in dealing with it.

The trigone is a small, smooth triangular region at the base of the bladder that signals the brain when the bladder needs to be emptied. As the bladder becomes more full, the trigone increases the urgency of the signals to the brain.

In trigonitis, inflammatory lesions form on the trigone region, causing symptoms of urgency, frequency and pain.

Trigonitis is diagnosed much more often in women (usually of childbearing age) than in men. About 40% of women may have some squamous changes in the trigone, where it happens in only 5% of men. It is almost never diagnosed in children.

You mentioned that antibiotics were prescribed. Here is a doctor's forum from the IC association with a lot of questions and answers you may be interested in. There is one specific inquiry about trigonitis (check the 11th question) that discusses the use of antibiotics for treatment.

http://www.ichelp.org/Default.aspx?tabid=202

There are also a few questions here that address trigonitis:

http://www.ic-network.com/askthemd/feb2001.html

Here are some women in a naturopathic network who are discussing trigonitis:

http://www.pandamedicine.com/rt_education/239-12.html
Hope this helps! In the meantime, is there anyone else out there who's been diagnosed with trigonitis? If so, we'd love to hear from you.

Take good care,
Pat