Talking to Your Doctor About End-stage Renal Disease (ESRD)
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You have a unique medical history. Therefore, it is essential to talk with your doctor about your personal risk factors and/or experience with end-stage renal disease. By talking openly and regularly with your doctor, you can take an active role in your care.
General Tips for Gathering Information
Here are some tips that will make it easier for you to talk to your doctor:
- Bring someone else with you. It helps to have another person hear what is said and ask questions you may not have thought of.
- Write out your questions ahead of time, so you don't forget them.
- Write down the answers you get, and make sure you understand what you are hearing. Ask for clarification, if necessary.
- Don't be afraid to ask your questions or ask for more information. You have a right to know.
Specific Questions to Ask Your Doctor
About End-stage Renal Disease
- Have my kidneys permanently and totally failed?
- Do you have any handouts or information that I may take with me?
- What tests do you do to locate a good match for me?
- How long is the wait to get a good match?
About Your Risk of Developing End-stage Renal Disease
- Based on my medical history, lifestyle, and family background, am I at risk for a renal failure?
- What can I do to help prevent renal failure?
About Treatment Options
- Are there any medications available to help me?
- What are the benefits and side effects?
- Are there any alternative or complementary therapies I should look into?
- Will I be cured?
- What type of dialysis do you recommend? Why?
- What are the complications of the different types of dialysis?
- Am I a candidate for a kidney transplant?
- How do I get on a transplant list?
- What are the complications after the transplant?
- How long do I need to get the immunosuppression drugs after the transplant?
- What are some common side effects of these drugs that I should know about?
About Lifestyle Changes
Can I exercise?
- What type of exercise is best?
- How much should I be exercising?
- How do I get started with an exercise program?
Should I make any dietary changes? How do I go about it? Should I see a dietitian?
- Should I stop drinking alcohol?
Should I check my blood pressure at home? How do I go about it?
- At what level should I maintain my blood pressure?
- What should I do if my pressure goes above a certain level?
- How often will you monitor my blood pressure and cholesterol level?
- How do I know if my blood pressure is staying within healthy limits?
- How often will you check my blood mineral levels?
- Will I be able to live a normal life?
- Will I be able to work and travel?
- How long will dialysis take and what will it be like?
- Will I die without dialysis?
National Institute of Diabetes & Digestive & Kidney Diseases website. Available at: http://www2.niddk.nih.gov/ .
National Kidney Foundation website. Available at: http://www.kidney.org/ .
Last reviewed April 2009 by ]]>Rosalyn Carson-DeWitt, MD ]]>
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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