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Chronic Fatigue Syndrome: Did You Know May 12th is Our Day?

By Jody Smith HERWriter
 
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Chronic Fatigue Syndrome: Did You Know May 12th is Our Day? 2 5 5
May 12 is the day for Chronic Fatigue Syndrome Awareness
Petr Malyshev/PhotoSpin

May 12, 2013 is International ME/CFS and FM Awareness Day. ME is the acronym for myalgic encephalomyelitis. CFS stands for chronic fatigue syndrome. FM is the short form for fibromyalgia.

In researching online for this article, I was disappointed by what I found ... or didn't find. I shouldn't have been surprised, I guess, after all this time. Nevertheless I keep hoping things will change as time goes on, and as advocates concerning ME/CFS continue to attempt to raise awareness of this debilitating condition.

I found plenty of personal blogs, Facebook pages, as well as ME/CFS forums and support groups that are doing their bit to raise awareness. But there has been nothing so far in 2013 in the way of newspaper articles online about International ME/CFS and FM Awareness Day -- not about ME/CFS, at any rate.

No medical websites spoke of this day set apart for this insidious illness. No national news reports about it. Not for ME/CFS. Again. Still.

It has been a little over 20 years since Tom Hennessey established our International Awareness Day in 1992. He picked the birthday of Florence Nightingale because she had spent the last 50 years of her life with a chronic and debilitating illness suspiciously like ME/CFS.

I find myself thinking that perhaps there will be articles appearing online as we get closer to the day. But past years' experience keeps this thought from becoming an actual hope. Certainly it is nowhere near an expectation.

Despite the two decades of striving for greater awareness, it seems we are still just a grassroots movement. The ME/CFS ghetto crying out in its beds, pleading for attention, asking for even a modicum of courtesy concerning our lamentable and terrifying condition.

What will it take for true recognition, for a shred of interest from the rest of the world, or even from this nation?

One of the problems with this scenario is that ... well, we are all sick. The dribbles of energy most of us experience is just not enough apparently to stir a ripple, create a blip on the outside world's radar.

Add a Comment4 Comments

Lisa Myers

Thanks for your sweet message, Jody. Yes, we're definitely in this together!
Best to you,
Lisa

May 8, 2013 - 9:43am
Jody Smith HERWriter (reply to Lisa Myers)

Happy May 12th, and International ME/CFS and FM Awareness Day to you.:)

May 8, 2013 - 11:23am
EmpowHER Guest
Anonymous

Great article, Jody. Thank you for bringing awareness to the plight of those who struggle with these illnesses.
-Lisa
http://livingwithcfs.com

May 7, 2013 - 3:32pm
Jody Smith HERWriter (reply to Anonymous)

Hi Lisa

I read the bio on your website and it seems you have also been doing what you can to raise awareness. Thanks for what you do as well.

Jody

May 7, 2013 - 4:04pm
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We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.

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