When you've got more than a cold or the flu or a brief elective surgery, you may well depend upon a spouse, best friend or family member to help you get back on your feet. If it's a serious condition, it may be a really tough job.
Lisa Velasco of Jefferson, Ga. is sure that the love, understanding and support of her husband, Angel, and their children, Michael and Alex, helped her get to a place where, as she says, she looks forward to “growing to be an old lady.”
Velasco has chronic myelogenous leukemia (CML), a rare condition diagnosed in about 5,000 people a year in the United States. This blood cancer causes the bone marrow to produce too many white blood cells.
Up until a few years ago there were few treatment options and most patients died. Today there are several new targeted therapies that enable most CML patients to live a normal lifespan.
Velasco was fortunate to be diagnosed at a time when there is tremendous, lifesaving, progress. But, even so, the emotional burden of being diagnosed with a serious condition is high.
With most of her family in another country, Velasco’s husband took on the critical role of caregiver and was her “everything” as she started and responded to treatment. For her, Angel, was truly her "angel."
Hear about this directly from her in the video interview I did for Patient Power at http://www.patientpower.info/video/lisa-velasco-managing-cml-with-a-husband-s-strong-support/
As a cancer survivor myself, I know how important it is to have understanding and support from someone close.
My wife, Esther, has been there for me for many years. But it takes communication and mutual understanding. Sometimes the partner needs support for themselves too, as trying to remain positive day-in day-out can be difficult.
Counseling for the patient and the caregiver can help tremendously, as it did for me and Esther when I was diagnosed. Services are available in most communities.
U.S. patients and caregivers can find free online counseling and support resources from oncology social workers through the national nonprofit organization www.CancerCare.com/