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a 22 year old that has had JDMS since 6 yrs of age ...recently been off all her meds, is now pregnamt....we are scared to death...please advise reasonable expectations.

By Anonymous December 12, 2011 - 1:25pm
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My prayers and best wishes are with her for a good prognosis,safe pregnancy and healthy baby.


December 15, 2011 - 5:59pm
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Anonymous (reply to Maryann Gromisch RN)

thank you very much...and have a merry Christmas

December 19, 2011 - 1:00pm

I can appreciate your concern. The young woman's physicians-gynecologist, internist and rheumatologist-are the best ones to give you the potential risks and prognosis.

I don't know much about juvenile dermatomyositis. I looked for information on the internet and found this article http://www.medscape.com/viewarticle/567525_2

"Patients with autoimmune diseases face several pregnancy-related problems as well as disease flares during and after pregnancy. Dermatomyositis /polymyositis (DM/PM) is an uncommon medical disorder complicating pregnancy. It may start before, during, or even after pregnancy.[1,2] Optimal outcome can be anticipated when the pregnancy is undertaken with the disease in remission.[3] Pregnancy outcome is especially poor with disease onset or flare early in the gestation compared with an exacerbation in the second or third trimester, when the fetal prognosis is usually good"


December 12, 2011 - 6:04pm
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Anonymous (reply to Maryann Gromisch RN)

thank you very much for the info....she has been in remission for several months....and is 9 weeks along....so not to much longer to have better prognosis for the baby...

December 15, 2011 - 12:48pm
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