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i had a complete hysterectomy at age 43. now i am 48.i often experience a dull pain below the upper portion of my pubic bone .i have a history of recurring uti.the pain is mild but has been there since past couple of months.
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Hi Diane,
April 7, 2018 - 6:11pmJust a quick note and if I misunderstood your comment I apologize. I had a full hysterectomy and take hormone replacement and endometriosis can come back, it never goes away. Pelvic pain can be many things but if there is a history of endo I would tell HGK to get it looked at.
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My name is crystal I'm 27.. I had endometriosis and had a complete hysterectomy a few years ago I don't have anything left but I still suffer with very bad lower back pain and pelvic pain ever since and I'm not taking any medication I been taking ibuprofen 800mgs nothing helps.. the pain gets so bad where I can't move and binds me over.. I don't believe or trust doctors they all say even the hospitals we don't know what it is or lie and say a utility or muscle spasms witch it's not..
January 22, 2017 - 4:01amThis Comment
Anon,
Endometriosis is fed by estrogen, which can come from the ovaries (did you also have them removed?) or from estrogen in hormone replacement therapy (are you taking any?)
If you had your ovaries removed and you are not taking HRT, it's unlikely that the cause of your discomfort is endometriosis.
Here's some information from about.com:
In a study conducted by Johns Hopkins, women who had a hysterectomy that did not include removing the ovaries were far more likely to have endometriosis that caused pain in the years following surgery. In that study, 62% of women who kept their ovaries had endometriosis pain and 31% needed a second surgery.
The results were far different for women who had their ovaries removed during the hysterectomy procedure. Ten percent of those women experienced pain from endometriosis after surgery and less than 4% needed a second surgery.
Does this help? What is your situation?
May 3, 2010 - 9:56amThis Comment
Not true, I had a complete hysterectomy , however my doctor left a tiny bit of ovary and it has been growing over the past 20 years, and 15 surgeries, my surgeon said that it only takes a speck left behind during surgery.
October 2, 2015 - 7:32pmThis Comment
Dear all
July 7, 2010 - 12:00amMy name is Diana, I have endoemtriosis since last 5 years and two operations (last one in march). Unfortunaly endom. is back, already 2.5cm. In september I will try an FIV and some homopat treatment.
I'll be back with results
Wish you all the best and health
Diana
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Hi Diana - Thanks for sharing your story, and I hope you will come back and let us know about your results. Good luck! Pat
July 7, 2010 - 5:10pmThis Comment
Hello Pat
I have just read about your health problems. It is impressive that you have the power to go on.
July 8, 2010 - 1:11amI appreciate your involvement; I understand that you have some kind of journey about how you face disease. I belie your memories, if may I say so, could be helpful for other people that has to face similar situations. Are there any possibilities to send me some "surviving advice"?
Thank you
Diana
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Hi Diana - What a nice thing to say, thank you!
I've found that the best way for me to move forward is to understand as much as possible about my medical condition and to connect with other people who are also going through the same struggles. The medical system is mainly focused on the clinical side of health issues and doesn't devote very much time or resources to all of the emotional aspects and the changes that affect how you live from day to day. Patients who expect their doctors to do everything for them end up getting very frustrated. In an Internet world we can now access more information than ever before and we can connect with other people online in ways that were never possible before.
I have never had endometriosis but I have a friend who had issues from this for many, many years and I know it was hard for her. There are some organizations you can look into to see if they would be helpful for you. If you like some and don't like others, that's perfectly fine, what's important is to find what you are comfortable with.
Here's some resources:
The Endometriosis Association: http://www.endometriosisassn.org/
Enometriosis Organizations around the world: http://www.endometriosis.org/support.html
Daily Strength Support Group: http://www.dailystrength.org/c/Endometriosis/support-group
Your doctor's office may also be able to help, with information on local groups or organizations.
Let me know if this helps and is what you had in mind. Sometimes just knowing there are others who have the same health condition as you makes a world of difference in being able to go forward.
July 8, 2010 - 5:19pmTake care,
Pat
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Thank you PAT,
These information’s are verry helpful for me.
How old is your friend? Since when does she have endom.? Does she have any kids? Sorry for all these questions, but in Romania this subject is zero and doctors says they can not do anything. I should pray to God and need a lot of luck.
I believe I can face this problem; I just want to have 1 or 2 babies and manage to raise them. Doctors are telling me that I really need a miracle for this to happen. And, time is not my ally neither –I already had two operations, very small part of my ovaries has survived…and , the worst ..the cyst is back (already 2.5 cm after just 3 months from my last operation). So, you can see how desperate I am. Last chance is to have an FIV (vitro fertilization). For this we took money from the bank and really hope to be a successful procedure. We can not afford to do it just once, probably in September.
Thank you Pat, I can write to you/discuss…this helps…If I can help you/or you friend in any way please, just let me know…a word, a pray…or if you come in Romania…here I am.
Best wishes and have a nice weekend
July 9, 2010 - 2:14amDiana
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Hi Diana - I worked with my friend about 10 years ago when she was dealing with this. I'm happy to say that she and her husband have two beautiful, healthy twin girls now. Please don't give up. It might help to view your quest as advocating for yourself rather than as being "desperate" since a positive attitude is very helpful in overcoming problems. It certainly has been for me and other cancer patients that I know, and it makes life a lot more pleasant.
Here are some links to information about endometriosis that you may not have seen yet. http://www.mayoclinic.com/health/endometriosis/DS00289
http://www.medicinenet.com/endometriosis/article.htm
I hope you find these helpful, and that you have a nice weekend too!
July 9, 2010 - 4:31pmPat
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