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how do I know when pityriasis rosea is healing?

By Anonymous May 21, 2010 - 6:21am
 
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I was diagnosed with pityriasis rosea almost 6 weeks ago. Apparently it takes 6-8 weeks to disappear, but I keep finding new spots every time I shower, new red spots seem to pop up. The first ones I got seem to keep changing. Does anyone know what these spots are meant to look like before they just disappear?

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It will be white when it is going away. I am currently battling this. I have had it since Nov 19th and my best results have been to wash in a cool shower dry off lightly and immediately cover my body in coconut oil. I take 4 gel capsule coconut oil pills a day and I wash in Head and shoulders shampoo. At Night I take two benedrly and it seems to be going away. I can tell you that your body's internal temperature has a lot to do with this. By this being my second month of having I had had two menstrual cycles and this got horrible. I swear by the coconut oil and the capsules. They have helped tremendously. 37 yr old female

January 20, 2014 - 5:56pm
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Anonymous

I've had this skin condition since May 2013 and it is slowly covering the lower half of my body and starting to move up. I was wrongly diagnosed for the first few months as health professionals thought it was ringworm and supplied me with anti-fungal creams. I was diagnosed sometime around October 2013 after my second biopsy and given a cream from my dermatologist but new patches appear daily and the old ones are extremely rough. The first rash is just now barely visible. Is there anyone who has suffered from this annoying condition for this long and did it ever completely go away or is this a life long struggle?

January 12, 2014 - 10:22am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hello, I amgoing through the same thing. I was first diagnosed around July last year 2013 with ringworm and after using the anti fungal cream and the rationale clearing up I then went to the dermatologist who diagnosed me with PR. The rash seems to be cycling over and over again, it is now and April 2014 and I'm still dealing with it. The steroid creams help but the rash always seems to come back. I would really like to know what kind of medication some people with PR are takin because I really think some medication triggers an outbreak, what kind of other health conditions some may have in common and I also blamed my dogs so does anyone else have pets?

April 19, 2014 - 5:19am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hi, I noticed my Herald patch 3.5 weeks ago and was officially diagnosed yesterday. My doc prescribed acyclovir becuz he said this virus is thought to be associated with human herpes 6&7. I Wikipedia the virus and found the same thing. So far I've been taking the medication and showering with head and shoulders shampoo. Then I apply coconut oil to my body. Both help with the itching, but I haven't seen any real improvement. Since I've only started taking the meds 24hrs and been bathing with the aforementioned products only 4 days..perhaps I need to give it some time.
My family as a strong history with cancer, so refuse to try tanning beds. Ill let you know what happens after I finish my meds.
PS: I don't have pets

November 21, 2014 - 12:24am
EmpowHER Guest
Anonymous (reply to Anonymous)

I was diagnosed May 19th so i have had it for almost 3 weeks now. This is my second time getting it, I first has PR two years ago around the same time of year. I thought they were hives so didn't go to the doctor until i had for 2 months. I don't have any pets and i only take birth control on a regular basis so i don't think its drug related. This time around i went to the dermatologist right away and she gave me a hydrocortisone cream and erthromycin. Within the first week of taking the oral meds it started to dry up and peel. Now at 3 weeks they are all peeling so i thin the erthromycin is working. This time i got it on my hand, face and scalp its unbearable i hope it goes away soon!

June 6, 2014 - 10:07am
(reply to Anonymous)

Yes, i truly understand what you are going through.Ive battled this since high school. I have figured out how to cure it after it appears but i havent mastered the prevention yet. Anyway, the only thing that cures it fast is UV light (tanning beds or natural sunlight) I found out by accident. I realized that my right arm was clear of the rash but my left arm wasnt so after thinking about it, i realized that my left arm is what was being exposed to the sunlight from it beingon the armrest when i drive. I then tested it out and layed out on my balcony in the sun and low and behold, i saw a huge difference within just 5 days. Then i did some research and found out that acne and other skin conditions are treated by using some type of UV light. Trust me, this is what cures it. It drys it out quickly. I cant wait til the summer now so i can get rid of the ones that have developed this winter.

January 25, 2014 - 9:08am
EmpowHER Guest
Anonymous (reply to Anonymous)

Your story is similar to mine ... I went to my doctor twice and a Clinic doctor once. After three months and still getting worse with the anti-fungal creams not working I took matters in my own hands and did plenty of research comparing what was happening to me with other known rashes.

When I started reading about Pityriasis Rosea I was pretty sure I found the problem. I stopped taking hot baths and only took cool baths and starting going to the tanning salon using a stand up tanner for 6 minutes. I also quite using all the expensive creams that were not working (in fact I think it was making it worse).

After 10 days I can see positive results ... no new break outs (after one HV treatment), the affected areas on my body are gone. My Ass cheeks are almost clear and I can see dramatic fading in all the worst areas of my legs and arms.

I am still waiting to hear back form the Clinic doctor as to what I have as he took a scraping and sent it off to the lab, but at the rate I am recovering I suspect I will be cured by the time I can a official confirmation.

January 13, 2014 - 11:40am
EmpowHER Guest
Anonymous (reply to Anonymous)

Well i am now 3 weeks into using tanning to fight this thing ... have gone about 10 times and the only area still affected is my right hand. The rest of my body is covered is fading purple patches.

I took a hot bath today for the first time in a month and am sleeping through the night with out having to take anything. I figure another week and I will be left with the fading patches, so for me it has taken 4 months and if I had not discovered tanning I am sure I would still be in the thick of it.

January 27, 2014 - 10:31pm
EmpowHER Guest
Anonymous

Oh, forgot to add: you'll know when your PR is really healing because your patches will start to look scaley and have peeling skin. It's a good sign when this happens! You're almost out of the woods.

November 12, 2013 - 6:00pm
EmpowHER Guest
Anonymous

So grateful to everyone who shared their experiences on this thread, I found it really helpful in dealing with my own PR. Here's my story:

I got a herald patch on my stomach the first week of July and thought it must be heat rash. I ignored it as it didn't itch or hurt, but about two weeks later I had red blotchy patches on my upper chest and in the crooks of my arms, which did itch and were really unsightly. I was misdiagnosed twice, first by a GP who thought I had a fungal infection, and then by a dermatologist who told me it was probably contact dermatitis from some new environmental allergy. He gave me corticosteriod creams and sprays, which did help, but only temporarily. When the patches kept recurring whenever I stopped use of the corticosteriods he switched his diagnosis to eczema.

At this point I was panicking: I was racking my brain trying to eliminate potential allergens and eczema irritants from my life and find a treatment that would soothe my "eczema. I stopped using my laundry service, started washing my sheets and towels nearly daily (in case it WAS actually a fungal infection), changing all my toiletries, moisturizing multiple times a day with lotion and coconut oil, taking only long cold baths instead of hot showers. Nothing was really helping and I was miserable!

Fortunately I went to see an eczema specialist, who almost immediately realized I had PR and not eczema (thank God!) At this point it had been about two months since my herald patch. She told me there was nothing I could do except let the infection run its course, and that I should avoid corticosteroid creams if I could manage the itching without them, due to the nasty side-effects associated with their use. She told me I should return for a follow-up if my infection wasn't over by four months from the first appearance of my herald patch. Fortunately, it seems to be over (knock wood!)

I really believe that exposure to light helps. My rash was worst on my stomach, chest, and upper arms (relatively less exposed to light than other parts of my body). The only place on my hands I got the rash was directly underneath a thick ring I always wear (a part of skin that thus doesn't get any light exposure). I'm quite fair and concerned about UV exposure under normal circumstances, but I did try to get brief (15-30 min or so) exposure to sun each day on the parts of my body with the rash.

Based on my experience, I'd say try corticosteroid creams at the lowest dose you can if you need to clear up your rash for some kind of important event like a wedding. They do work for PR temporarily, but your rash will keep recurring until the infection has run its course so it just doesn't seem worth it to use them what with all the associated side effects, barring exceptional circumstances.

Hope everyone struggling with PR finds relief and gets better soon! Hang in there.

November 12, 2013 - 5:58pm
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