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I have had an extremely high Anti-CCP reading for several years all other RA test are normal to slightly evelated. I have a lot of pain and stiffness in my body. What are my changes of having RA?

By Anonymous August 15, 2010 - 3:37pm
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I have been suffering from stiffness and pain in my body for several years. About 2 years ago I found out that my Anti-CCP is extremely high in the 800's. All my other RA test are slightly evelated or within normal range; but I my Anti-CCP is extremely high. I am a 53 years old female. My doctor do not know what is wrong with me. HELP.

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Hi Anonymous

An extremely high result on this test usually indicates rheumatoid arthritis. Lab Tests Online has a nice explanation: http://www.labtestsonline.org/understanding/analytes/ccp/test.html.

Are you seeing a rheumatologist? It sounds like your physician is not familiar with how RA is diagnosed. Lab results are secondary. Rheumatoid arthritis is diagnosed with a physical exam and a careful history. Things like lab work and x-rays help confirm the diagnosis sometimes, but many people are sero-negative and have RA, meaning the labs are normal but they still have RA.

You sound like you have symptoms and a positive test. I suggest you see a rheumatologist to get a proper exam, diagnosis and treatment plan. The long you go undiagnosed and unmedicated, the more permanent joint damage you will have. RA is a serious, systemic illness. It deforms your joints but also increases your risk for cardiac disease, some lung problems, and lymphoma. It is very important to be treated by a doctor who understands RA and is up to date on diagnosis and treatment.

The Arthritis Foundation has a nice description of how RA is diagnosed: http://www.arthritistoday.org/conditions/rheumatoid-arthritis/all-about-ra/diagnosing-ra.php, and another good resources it the American College of Rheumatology: http://www.rheumatology.org/practice/clinical/patients/index.asp.

We have information on RA as well: http://www.empowher.com/condition/rheumatoid-arthritis, and I am the leader of our RA group and a patient myself. If we can assist you further, please don't hesitate to ask. Thank you for writing.

August 17, 2010 - 7:47am
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Anonymous (reply to Cary Cook BSN RN)

Thank you very much for your explanation, sorry my English.
I have been diagnosed with CCP consistent with rheumatoid arthritis very high> 250 stated with Azulfidine.
But stopped with treatment after losing my insurance.
Now after 4 years, one operation in my right knee meniscus.
Today I did the MRI from my left knee maybe I have to do another operation same as the right one.
I used to walk 2 miles with my dogs now I can’t walk anymore.
I’m doing some aqua yoga and aqua arthritis but I can see any improvement.
I feel unwell all the time, I can’t stand for more than 15 minutes.
Thank you very much for all the information you gave.
You’re a great RN.

September 17, 2015 - 8:47pm
HERWriter Guide

Anon - Thank you for your question, and welcome to EmpowHER. We will be back with you soon with more information to assist you.

August 16, 2010 - 6:21pm
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