I have Myasthenia Gravis (sero-negative). My diagnosis came about as a result of a positive Tensilon test, family history, SFEMG (occular at the time) and clinical symptoms. I also have Graves Disease.
My symptoms include muscle weakness in my extremities after prolonged use, occassional dysphasia, slurred speech (again after extended periods of talking) as well as double vision. When I do present in the ER, it is because I cannot swallow without choking on my own saliva and I can feel myself going limp. Most of these symptoms occur over a period of weeks.
I do not lose feeling in any part of my body. I do not go blind. I do not have seizures.
I am currently on Synthroid for my thyroid and MG meds include Prednisone, Imuran and Mestinon.
My neurologist decided that I should have psychological testing, because she felt I had some psychological functional overlay. After 160+ T/F questions, the diagnosis was Conversion Disorder. I was prescribed Wellbutrin by my psychiatrist and see him every 5 to 6 weeks.
At one point my neurologist felt that I displayed drug seeking behaviour (going for big guns instead of taking an aspirin), however, I have since found out that things like the awful pain and swelling in my wrists and hands are a direct result of osteoarthritis. My rheumatologist has prescribed stronger painkillers.
I am also on a Bi-Pap machine whenever I lay down for a rest and my neurologist has said that she only wants me to use the machine at night. After an in hosp sleep study, my Pulmonologist wants me to use the machine whenever I lay down, in case I fall asleep. Without the machine, I end up with wayyyy too much carbon dioxide in my blood.
I have nothing against the psychiatric field, but I also wonder if maybe the T/F test and my admission of being molested as a child are enough to warrant such a diagnosis? Or, perhaps I didn't answer the questions properly or, perhaps I shouldn't have said anything about being molested?
Most times, when I see my psychiatrist, we usually just shoot the breeze. For instance, how's the family, what's happening in your life, etc. Sometimes I feel I get more out of talking to a close friend.
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