please help me help my mother! after several years of being ill, and seeing 32 physicians within only one year, she has been told she has 'a very rare condition' and they are calling it NON-hereditary angioedema. so far, no physician she has been to has been able to help her. now they are telling her that since the swelling in the neck increases with time and episodes that she may have to have a tracheotomy. she is young - only 64 - and i just know that there is a specialist somewhere in texas where we live, or in the nation - even the world - who KNOWS more than any other about this condition and what they can do to help her become well or manageable.
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