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Treating Muscular Dystrophy using Exon-Skipping Therapy

By Anonymous September 3, 2010 - 7:17pm
 
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My brothere is 8 years old, he is suffering from duchenne muscular dystrophy, we have been trying to find any cure or treatment since he was 5 years old. We are in desprate need for your help.
I would like to know how can we get him through your exon-skipping therapy trial? Where is your center located? and how FAST can we do that?!?!
Please... Please... we really need your help... and we hope that you might be able to help us in any way!!
Thank you so much! Thank you for your time!

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I have two sons with Duchenne MD. One is 19 and one is 20. Diagnosed at age 5.
Over the years the best I have found to be best is glutamide, creatine, vitamin C chewable and a liquid multi vitamin. this will keep kids with this disease healthy, eating and regualr until there is a cure.

July 21, 2013 - 1:03am
HERWriter Guide

Anon - EmpowHER has more than one million visitors every month and we are not able to provide updates to individuals. The best way to stay informed is to register as a member of the site and to stay in touch. We have information that will help your entire family take care of their health.
Best wishes for your brother. Please keep us posted on his progress.
Pat

September 6, 2010 - 1:32pm
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