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The child is a survivor of a AVM that burst with multiple surgeries to try to repair. He is unable to move one side and has no control over the other side. The side he does move has terrible muscle spasms at one side causing his head to turn to extreme and causing scoliosis.
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Hello Anon
Thank you for writing.
For the benefit of our readers, an arteriovenous malformation of the brain (AVM) is a tangle of arteries and veins, which short-circuits healthy blood flow. Blood which normally is pumped through arteries then through smaller vessels called capillaries, is instead sent back through the veins to the heart.
Nourishment of the tissues with oxygenated blood should take place within the capillaries but an AVM has no capillaries. Tissues nearby an AVM can therefore be starved from oxygen deprivation.
AVMs can occur in many places in the body, but they are predominantly found in the brain or the spine. We will concern ourselves here with the ones that occur in the brain.
The cause of arteriovenous malformations of the brain is unknown. They are usually formed congenitally, or before birth.
A person with an AMV might not experience any symptoms throughout their lives, or they may at some point experience headaches or seizures, or symptoms that are much more serious, some of them quite dangerous.
Anon, we don't have the information you need in terms of treating these spasms. You will need to talk to this child's specialist. I wish we could help you further but this question needs to be addressed to your child's individual specialist who has his medical records and knows his history.
Please keep us posted and I wish the best for you and this child.
August 25, 2017 - 7:30pmBest,
Susan
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