Facebook Pixel

Why is there very little information about Trigonitis and what can I do about it?

By May 8, 2009 - 9:14pm
Rate This

Dear Anyone who can help,
My name is Rebekah and I have had chronic, terrible pelvic pain for over a month.
I have been through a lot in one month in terms of tests, ultrasounds, evaluations, etc. due to seeming bladder infections that did not go away and then supposedly went away but the horrid symptoms kept getting worse and worse and I had the most horrible "flares" anyone could have of this condition, which my Urologist told me today was Trigonitis.

After being given this diagnosis today, I was kind of in shock. I had already started a blog on Interstitial Cystitis, which I really felt I had due to the ongoing chronic nature of my symptoms.
I also jumped onto the IC Network which was extremely helpful and I got a lot of information.
However, I did not find much on Trigonitis anywhere so far.

My Urologist got irritated and mad at me when I kept insisiting I had IC b/c I had to get the Cystoscopy and he did not want to tell me anything until I had that.
It was not until I had the in office Cystoscopy today that he said that it was not Interstitial Cystitis but Trigonitis.
However, some people have told me that this type of Cystoscopy is not entirely normal and that it is not always accurate.
I had been in so much pain at one point that I was considering suicide but my father and chiropractor talked me out of it.

I have been brave b/c so many other women out there are brave and have been through hell with their pain.
I am trying to learn as much as I can.
Drugs I have been prescribed so far are :Pyridium Plus (Helps somewhat with inflammation and pain, but not a lot), Elmiron (Another Urologist prescribed that to me, but I have horrible side effects and not sure how much it helps), Detrol (which seemed to help right away) and Ultram for pain (I am allergic to Vicodin and Codeine.)
Really, not even prescription Naproxen has knocked out my inflammation and I am truly in terrible pain.
Can you give me some insight?

Gratefully in Seattle,

Add a Comment2 Comments

EmpowHER Guest

I'm curious about how you are doing now? I was diagnosed with Trigonitis recently after 6 month of thinking I had IC. I hope I can treat it with antibiotics!!

May 18, 2013 - 5:50pm
HERWriter Guide


Thank you so much for your share - I'm sorry you are in such pain - it sounds horrific. This condition is much more common in women than men.

Unfortunately there is no fully reliable treatment for trigonitis - antibiotics work for some, for others they aren't much use.

And you are right, there isn't a lot of information out there, possibly because there is no conclusive reason on why a person gets trigonitis, nor is there a real cure.

Has your urologist told you of your prognosis? Some trigonitis clears by itself - others have surgery or simply live with courses of medication. What are your options, here? Has your doctor said?

In the meantime, check out our forum on trigonitis here, where you can read about fellow sufferers of this painful condition and please give us an update on what your doctor has outlined for you...

Also, you mentioned that the pain is so bad you have contemplated suicide. Do you still feel like this at times? Is your dad aware of this?


May 9, 2009 - 5:46am
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy
Add a Comment

All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.

Interstitial Cystitis

Get Email Updates

Interstitial Cystitis Guide


Have a question? We're here to help. Ask the Community.


Health Newsletter

Receive the latest and greatest in women's health and wellness from EmpowHER - for free!